CJD FOUNDATION NATIONAL HELPLINE - 800-659-1991
The Creutzfeldt-Jakob Disease, Inc. (CJD) Foundation, a nonprofit 501 (c)(3) has established a NATIONAL TOLL FREE HelpLine. 800-659-1991. The HelpLine is answered 9-5 Monday thru Friday. At all other times messages can be left and will be returned promptly.
PATIENTS, FAMILY MEMBERS, MEDICAL & HEALTHCARE PROFESSIONALS, AND ANYONE INTERESTED IN CJD ARE ENCOURAGED TO PHONE OR EMAIL FLORENCE WITH:
Questions about a suspected
or confirmed CJD diagnosis
General questions concerning
CJD
Questions concerning patient
care
Questions concerning family
support
Questions about research
Questions about surveillance
Questions and concerns about
funeral arrangements and/or
autopsy
Donations to The Foundation
The Foundation provides
emotional support to
individuals and families
dealing with CJD and other
prion diseases as well as
practical information to
caregivers through our
website
THE CJD FOUNDATION
Provides support to
families.
Provides information to
concerned healthcare
professionals, funeral
directors, embalmers,
the press and media.
Promotes research and the
dissemination of research
findings.
Advocates for good quality
care for those afflicted
with CJD.
Actively advocates for the
development of a response
through public policy.
For more information contact the CJD Foundation
P.O. Box 5312 Akron, Ohio 44334
or 286 N. Cleveland-Massillon Rd., Suite N, Akron, Ohio 44333
330-665-5590
HelpLine: 800-659-1991 and ASK FOR FLORENCE OR MARISA
Fax: 330-668-2474
www.cjdfoundation.org