The following links may be helpful to you:

The United States Senate: www.senate.gov
The United States House of Representatives: www.house.gov
The White House: www.whitehouse.gov
The Governor's Association: www.nga.org

National Prion Disease Pathology Surveillance Center
Dr. Pierluigi Gambetti,
Director, Institute of Pathology Case Western Reserve University
2085 Adelbert Rd.
Cleveland, Ohio 44106
Phone: 216-368-0587
Online: www.cjdsurveillance.com
Email: cjdsurv@po.cwru.edu

CJD Insight, Information & Support
Organized for Familial CJD
Deana Simpson, RN, Founder & Director
Phone: 586.786.6260
Online: www.cjdinsight.org

Centers for Disease Control and Prevention (CDC)
1600 Clifton Road, Atlanta, Georgia
Phone: 1.800.311.3456 or 404.639.3396
Online: www.cdc.gov

CJD Voice (Chat Room)
Moderator, Dorothy Kraemer
Online: www.cjdvoice.org
Online discussion, support, and information site

National Organization for Rare Diseases (NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923
Phone: 203.746.6518 or 1.800.NORD (6673)
Fax: 203.746.6481
Online: www.rarediseases.org

National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health
31 Center Drive MSC 2540
Bethesda, MD 20892-2540
Phone: 301.496.5751 or 1.800.352.9424
Online: www.nih.gov

Food and Drug Administration (FDA)
5600 Fishers Lane
Rockville, MD 20857
Phone: 301.443.1130
Online: www.fda.gov

United States Department of Agriculture Food Safety and Inspection Services (FSIS)
Phone: 202.720.9113
Infoline: 1.800.535.4555
Online: www.fsis.usda.gov
Information on food safety, meat and related products and meat inspection

United States Department of Agriculture Animal and Plant Health Inspection Service (APHIS)
Phone: 609.259.5825
301.734.7799
Online: www.aphis.usda.gov
Information on animal health and BSE

The CJD Alliance, U.K.
Online: www.cjdalliance.net
Contacts: Graham Steele or Don Simms

CJD Support Group Network Foundation, Australia
Online: www.cjdsupport.org.au

CJD Support Network, U.K.
P.O.Box 346 Market Drayton
Shropshire TF9 4WN
Phone: 0163.067.3973
Online: www.cjdsupport.net