The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.
The 2022 Conference will take place July 15 - 17, 2022
Capitol Hill Advocacy Day: Monday, July 18, 2022
Saturday and Sunday, we’ll learn about the latest scientific discoveries. With the help of our Medical Director, we invite scientists conducting new and promising prion disease research to speak to our families about their work. We’ll also hear about the work of the CJD Foundation, the CDC, APRI, the NPDPSC.
Monday is devoted to visiting your state representatives on Capitol Hill. We set up the appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to make our voices heard and to request continued funding for prion disease surveillance.