End of Life Issues
When you are dealing with a loved one struggling with Creutzfeldt-Jakob Disease, you are coping or attempting to cope with a disease that steals your loved one away, day-by-day.
CJD usually has a rapid course. It brings many questions and few, if any, answers. We wish the reality was different. Researchers are working hard to change that reality. You deserve answers and support as you cope with the illness of your loved one.

We offer some answers through this website and our toll-free HelpLine, 1-800-659-1991. Please call Debbie or Lori to discuss your questions and concerns.
  • Letter to Clinicians from Dr. Jiri Safar, Director, National Prion Disease Pathology Surveillance Center