Family Workshops

CJD Family Workshops are open to all families affected by a prion disease. They are designed to provide support, education and the opportunity for open dialogue in a secure forum.

Our next Family Workshop is Thursday, November 2, in Charleston, S.C., from 5 to 7:30 p.m.

Courtyard by Marriott Charleston, 35 Lockwood Dr.
* Casual reception from 5 to 5:30 p.m., followed by a Question & Answer Session from 5:30 to 7:30 p.m.

Speakers include:
* Dr. Brian Appleby, Co-Director, National Prion Disease Pathology Surveillance Center, and Medical Director of the CJD Foundation 

* Debbie Yobs, President, CJD Foundation
* Amanda Baxley-Kalinsky, RN, CJD Foundation Board Member

Atlanta Family Workshop, 2015

Please register by October 30 by calling 1-800-659-1991 or email

This workshop is sponsored in part by The Centers for Disease Control and Prevention and a generous gift from the Marcos Amongero Family.


The CJD Foundation has hosted Family Workshops in the following cities:

Birmingham, Alabama; Cincinnati, Ohio; Detroit, Michigan


New York City; Sherman Oaks, California; and Tucson, Arizona

Atlanta, Georgia; Carmel, Indiana; Durham, North Carolina; 
Miami, Florida; Salt Lake City, Utah; and Minneapolis, Minnesota

Austin, Texas; Cleveland, Ohio; Eugene, Oregon; Madison, Wisconsin; Pittsburgh, Pennsylvania; Portland, Maine; and St. Louis, Missouri

Minneapolis Family Workshop, 2015