History


1993
-- The CJD Foundation, Inc. (CJDF) is established in Miami, Fla., by Mayra Lichter and Cele Sardo.
 






1999
-- CJDF c
ollaborates with the National Prion Disease Pathology Surveillance Center at Case Western Reserve University in Cleveland, Ohio.




2000 -- First CJD scientific conference is held in Miami, Fla.

2001 -- A CJD task force and political advocacy group is formed.

2002 -- CJDF moves to Akron, Ohio, in September, and the Helpline is established in November. The first family conference is held in Washington, D.C., in May.


2004
-- CJDF receives its first Co-operative Agreement grant from the Centers for Disease Control and Prevention. The organization continues to receive this grant.  






2005 -- CJDF creates three educational DVDs: one for medical professionals, one for infection control personnel and one for funeral directors and embalmers.


2006
-- The CJD International Support Alliance is formed. As of 2016, it includes 10 member countries.





2011 -- CJDF initiates Family Workshops which continue to be held around the country.


2015 -- The organization hosts its first-ever Strides For CJD fun run/walk event in nine locations throughout the United States.