Family Memorial Research Grants

A family that signs an agreement for a $10,000 Memorial Research Grant* may provide those funds by:

  • Donating: in one or two scheduled payments (as detailed in a Memorial Research Grant agreement)
  • Fundraising: Families have raised funds for research in many creative ways.  Many find that the act of fundraising engages their friends and family in the battle against CJD, and promotes opportunities to raise awareness and educate their communities about CJD and its impact.  Fundraisers have included benefit dinners, music shows, runs, raffles, golf outings, and more.  Setting up a Friendraiser page for your fundraiser enables you to route online donations to the CJD Foundation. 

For more information or to pledge a research grant, contact us at 800-659-1991 or

Note:  Agreement must be completed before fundraising begins.  Fundraising regulations vary by state.  To raise funds for the CJD Foundation, you must obtain advance permission and follow the guidelines of the CJDF event planning and logo usage agreement.  Contact the CJD Foundation before proceeding.