Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Monday, September 17, 2018 - 6:00pm

This group meets one Monday each month in Manhattan.
Upcoming meetings: Oct. 15, Nov. 12 and Dec. 10!

Advance registration is required; email Help@cjdfoundation.org.

Saturday, September 22, 2018 - 4:00pm

10th Annual CJD Benefit Concert in Memory of Robert (Bob) Vitanza
Where: The Warehouse at FTC, 70 Sanford Street, Fairfield, CT 06824
When: Saturday, September 22, 2018 @ 4-11PM
Admission: $20 ($10 for kids 12 & under) in advance; $25 ($10 for kids 12 & under) at the door.

Saturday, October 6, 2018 - 9:00am

Our 4th annual Strides for CJD event is scheduled for October 6, 2018 (October 7 or 13 in some locations). Strides for CJD is a series of walk/run events in communities across the U.S. Families and supporters of those affected by prion disease gather to raise awareness, support each other, and raise funds for vital programs.

COMING SOON: Watch this website for a list of Strides for CJD 2018 locations.

If you don't live near those locations, you can register to run/walk in your hometown as an "Individual or Small Group."

For more information, visit https://cjdfoundation.org/strides

Monday, October 15, 2018 - 6:00pm

This group meets one Monday each month in Manhattan.
Upcoming meetings: Nov. 12 and Dec. 10!

Advance registration is required; email Help@cjdfoundation.org.

Monday, November 12, 2018 - 9:00am

Let's renew our determination, not only to honor our loved ones, but also to raise awareness.

Take a moment to educate others.
​Post on social media and educate friends and neighbors.
Proudly wear purple to show your support!

YOU have the knowledge to bring awareness to others. Together we can make a difference.

Monday, November 12, 2018 - 6:00pm

This group meets one Monday each month in Manhattan.
Upcoming meeting: Dec. 10

Advance registration is required; email Help@cjdfoundation.org.

Monday, December 10, 2018 - 6:00pm

This group meets one Monday each month in Manhattan.
Watch this website for info on 2019 dates!

Advance registration is required; email Help@cjdfoundation.org.

Thursday, February 28, 2019 - 9:00am

Today is Rare Disease Day!

Those of us affected by CJD remember and miss our loved ones every day. But today, Rare Disease Day, reminds us to join with others around the world to honor the memory of our loved ones, and to advocate for global awareness and education. 

Please share this message with your friends and families. You have the knowledge to educate others. Together we can raise awareness of prion disease and make a difference!

FIVE ways to commemorate Rare Disease Day:

Friday, July 12, 2019 - 9:00am

Please join us for the 2019 CJD Foundation Family Conference, July 12 to 14 (Advocacy Day, July 15), in Washington, D.C.

For more information, call 1-800-659-1991 or email us at help@cjdfoundation.org.