Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Wednesday, October 23, 2019 - 8:00pm

Time: 8:00 P.M. ET / 5:00 P.M. PT

For families affected by Gerstmann-Sträussler-Scheinker (GSS) Disease.

Michael Geschwind, MD, PhD, UC San Francisco Memory & Aging Center, will join us on this call to answer questions and discuss his work.

Monday, November 4, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: December 2
Advance registration is required; email Help@CJDFoundation.org.

Tuesday, November 12, 2019 - 9:00am

Let's renew our determination, not only to honor our loved ones, but also to raise awareness.

Take a moment to educate others.
​Post on social media and educate friends and neighbors.
Proudly wear purple to show your support!

YOU have the knowledge to bring awareness to others. Together we can make a difference.

Tuesday, November 12, 2019 - 5:00pm

Date: Tuesday, November 12
Time: 4:30 – 9:00 P.M.
Location: Courtyard by Marriott, Sherman Oaks
15433 Ventura Blvd, Sherman Oaks, CA 91403

This family forum is open to all families affected by a prion disease and is designed to provide support, education, and the opportunity for open dialogue in a secure forum.

Wednesday, November 20, 2019 - 8:00pm

Time: 8:00 P.M. ET / 5:00 P.M. PT

For families affected by Gerstmann-Sträussler-Scheinker (GSS) Disease.

Monday, December 2, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Last meeting of 2019! Watch here for 2020 dates!
Advance registration is required; email Help@CJDFoundation.org.

Tuesday, December 10, 2019 - 7:00pm

Join us for this teleconference support group with Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

This group is open to all families affected by prion disease and is designed to provide support, education and the opportunity for open dialogue in a secure forum.

To register and receive dial-in instructions and a participant code, email help@cjdfoundation.org or call 1-800-659-1991.

Wednesday, December 18, 2019 - 8:00pm

Time: 8:00 P.M. ET / 5:00 P.M. PT

For families affected by Gerstmann-Sträussler-Scheinker (GSS) Disease.

Friday, July 10, 2020 - 8:00am

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.