Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to Abby at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

Monday, September 11, 2017 - 6:00pm

This group meets one Monday each month in Manhattan. 2017 dates include:  September 11, October 2, November 6, December 4.  For more information, email Help@cjdfoundation.org.

Tuesday, September 12, 2017 - 5:00pm

Join us from 5 to 7:30 p.m. at Kingsgate Marriott Conference Center at the University of Cincinnati, 151 Goodman Drive. This workshop will be led by Dr. Brian Appleby, co‑director of the National Prion Disease Pathology Surveillance Center and medical director of the CJD Foundation, and Lori Nusbaum, program director of the CJD Foundation.

To register for a family workshop as our guest (no charge), call 1‑800-659-1991 or email abby@cjdfoundation.org. Registration is required.

Sunday, September 17, 2017 - 2:00pm

You are invited to the 9th Annual "ROCK4RV" CJD Benefit Concert, in memory of Robert (Bob) Vitanza, who was taken by Creutzfeldt-Jakob Disease (CJD) in 2008. All funds raised at the event will be donated directly to the CJD Foundation, Inc. (www.cjdfoundation.org), a 501(c)(3) organization that is committed to supporting individuals and families affected by this rare and fatal brain disease. Please join us for this rock-and-roll celebration of Bob’s life!

Tuesday, September 19, 2017 - 7:00pm

To register for a teleconference and receive dial-in instructions and a participant code, call 1‑800‑659-1991 or email Help@cjdfoundation.org.

Monday, October 2, 2017 - 6:00pm

This group meets one Monday each month in Manhattan. 2017 dates include:  October 2, November 6, December 4.  For more information, email Help@cjdfoundation.org.

Saturday, October 7, 2017 - 6:00pm

You're invited to the 5th Annual Espo's Hope for CJD, "A Night in Italy" Gala on Saturday, October 7.
Crowne Plaza Grand Ballroom in Green Tree, PA.
Details coming soon!
Visit http://www.esposhope.com/ to see pics from previous galas!

Tuesday, October 10, 2017 - 5:00pm

VENUE INFO COMING SOON!
Family workshops are open to all families affected by a prion disease and are designed to provide support, education, and the opportunity for open dialogue in a secure forum. These workshops are sponsored in part by The Centers for Disease Control and Prevention and generous gifts from our CJD families. Please join us!  To register for a family workshop as our guest (no charge), call 1‑800-659-1991 or email 
abby@cjdfoundation.org. Registration is required.

Saturday, October 14, 2017 - 9:00am

Our 3rd annual Strides for CJD event is scheduled for October 14, 2017. Supporters at 10 locations throughout the United States will walk/run to raise awareness and raise funds.

This year, there will be Strides events in Tempe, AZ; Beverly Hills, CA; Fort Collins, CO; Chicago, IL; Joppa, MD; Minneapolis, MN; Morris Plains, NJ; Cleveland, OH; Portland, OR and Wausau, WI. If you don't live near those locations, you can register to run/walk in your hometown as an Individual or Small Group.

For more information, to register and to support your favorite team, visit http://www.strides4cjd.com.

Tuesday, October 17, 2017 - 7:00pm

This call is ONLY for families of patients with Genetic CJD.

These evening conference calls allow families to ask questions of a prion disease expert, learn from the experience of other families, and lend support to one another.  To register for a teleconference and receive dial-in instructions and a participant code, call 1‑800‑659-1991 or email Help@cjdfoundation.org.

Thursday, October 19, 2017 - 5:00pm

VENUE INFO COMING SOON!
Family workshops are open to all families affected by a prion disease and are designed to provide support, education, and the opportunity for open dialogue in a secure forum. These workshops are sponsored in part by The Centers for Disease Control and Prevention and generous gifts from our CJD families. Please join us!  To register for a family workshop as our guest (no charge), call 1‑800-659-1991 or email 
abby@cjdfoundation.org. Registration is required.

Tuesday, October 24, 2017 - 7:00pm

Dr. Joel Watts, from the University of Toronto, will discuss his work and developments in the prion field.

These evening conference calls allow families to ask questions of a prion disease expert, learn from the experience of other families, and lend support to one another.  To register for a teleconference and receive dial-in instructions and a participant code, call 1‑800‑659-1991 or email Help@cjdfoundation.org.

Thursday, November 2, 2017 - 5:00pm

VENUE INFO COMING SOON!
Family workshops are open to all families affected by a prion disease and are designed to provide support, education, and the opportunity for open dialogue in a secure forum. These workshops are sponsored in part by The Centers for Disease Control and Prevention and generous gifts from our CJD families. Please join us!  To register for a family workshop as our guest (no charge), call 1‑800-659-1991 or email 
abby@cjdfoundation.org. Registration is required.

Monday, November 6, 2017 - 6:00pm

This group meets one Monday each month in Manhattan. 2017 dates include: November 6 and December 4.  For more information, email Help@cjdfoundation.org.

Sunday, November 12, 2017 - 9:00am
Tuesday, November 14, 2017 - 7:00pm

These evening conference calls allow families to ask questions of a prion disease expert, learn from the experience of other families, and lend support to one another.  To register for a teleconference and receive dial-in instructions and a participant code, call 1‑800‑659-1991 or email Help@cjdfoundation.org.

Tuesday, November 28, 2017 - 9:00am

#GivingTuesday is a movement that harnesses the collective power of a unique blend of partners—nonprofits, businesses and corporations as well as families and individuals—to transform how people think about, talk about and participate in the giving season. #GivingTuesday inspires people to take collaborative action to improve their local communities, give back in better, smarter ways to the charities and causes they celebrate and help create a better world.

To learn more about #GivingTuesday or to join the celebration of giving, please visit www.givingtuesday.org.

Monday, December 4, 2017 - 6:00pm

This group meets one Monday each month in Manhattan. This is the last meeting in 2017. Check back soon for 2018 dates! For more information, email Help@cjdfoundation.org.

Wednesday, February 28, 2018 - 9:00am

Rare Disease Day is an annual awareness day celebrated around the world dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face.&nbs

Friday, July 13, 2018 - 9:00am

Please join us for the 2018 CJD Foundation Family Conference, July 13 to 15, in Washington, D.C.