Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Saturday, February 29, 2020 - 9:00am

Those of us affected by CJD remember and miss our loved ones every day. But Rare Disease Day, February 29, 2020, reminds us to join with others around the world to honor the memory of our loved ones, and to advocate for global awareness and education. 

Please share this message with your friends and families. You have the knowledge to educate others. Together we can raise awareness of prion disease and make a difference!

FIVE ways to commemorate Rare Disease Day:

Monday, March 2, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Thursday, March 5, 2020 - 5:00pm

Date: Thursday, March 5
Time: 5:00 – 7:30 P.M.
Location: Crystal City, Virginia

This family workshop is open to all families affected by a prion disease and is designed to provide support, education, and the opportunity for open dialogue in a secure forum.

To register and get venue details, email help@CJDFoundation.org or call 1-800-659-1991.

Tuesday, March 10, 2020 - 7:00pm

Join us for this teleconference support group on Tuesday, March 10 with Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

This group is open to all families affected by prion disease and is designed to provide support, education and the opportunity for open dialogue in a secure forum.

To register and receive dial-in instructions and a participant code, email help@cjdfoundation.org or call 1-800-659-1991.

Wednesday, March 11, 2020 - 4:00pm

Date: Wednesday, March 11
Time: 4:00 – 7:00 P.M.
Location: Tampa, FL Area

This family workshop is open to all families affected by a prion disease and is designed to provide support, education, and the opportunity for open dialogue in a secure forum.

To register and get venue details, email help@CJDFoundation.org or call 1-800-659-1991.

Monday, April 6, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Wednesday, April 29, 2020 - 8:00pm

Time: 8:00 P.M. ET / 5:00 P.M. PT

For families affected by Gerstmann-Sträussler-Scheinker (GSS) Disease.

Monday, May 4, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Monday, June 1, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Wednesday, June 17, 2020 - 8:00pm

Time: 8:00 P.M. ET / 5:00 P.M. PT

For families affected by Gerstmann-Sträussler-Scheinker (GSS) Disease.

Friday, July 10, 2020 - 8:00am

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.

Monday, September 14, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 3, 2020 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Sunday, October 4, 2020 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Monday, October 5, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 10, 2020 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Sunday, October 11, 2020 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Monday, November 2, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Monday, December 7, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Friday, July 16, 2021 - 8:00am

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.