Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Saturday, September 22, 2018 - 3:30pm

10th Annual CJD Benefit Concert in Memory of Robert (Bob) Vitanza
Where: The Warehouse at Fairfield Theatre Company, 70 Sanford Street, Fairfield, CT 06824
When: Saturday, September 22, 2018 | Doors 3:30PM; Show 4-11PM
Admission: $20 ($10 for kids ages 12 & under) in advance; $25 ($10 for kids ages 12 & under) at the door.

Performances by:
4:00PMThe School of Rock Fairfield All-Stars
5:30PM: Shameless (party rock)
7:00PMSimple Jim (with Mike Vitanza)
9:00PM: Alive '75 (The ULTIMATE Classic Kiss Tribute)

Wednesday, September 26, 2018 - 8:00pm

You're invited to join this telephone support group for families affected by Gerstmann-Sträussler-Scheinker Disease, including caregivers, family members, and those who are mutation positive or at risk.  The call begins at 8 p.m. Eastern/5 p.m. Pacific.
To register, email help@CJDFoundation.org.

Saturday, October 6, 2018 - 9:00am

Join our 4th annual walk/run event, October 6 to 13, 2018. There are 14 Strides locations nationwide, or you can register to walk as an individual or small group. Through Strides for CJD, anyone — anywhere — can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.


Monday, October 15, 2018 - 6:00pm

This group meets one Monday each month in Manhattan.
Upcoming meetings: Nov. 12 and Dec. 10!

Advance registration is required; email Help@cjdfoundation.org.

Tuesday, November 6, 2018 - 7:00pm

Join us for this teleconference support group with Professor Robert G. Will, MD, FRCP(E), Department of Clinical Neurosciences, Western General Hospital, Edinburgh, UK, and 2018 CJD Foundation Family Conference Keynote Speaker.

Professor Will will discuss "Why Do People Get CJD?"

This group is open to all families affected by prion disease and is designed to provide support, education and the opportunity for open dialogue in a secure forum.

To register and receive dial-in instructions and a participant code, email help@cjdfoundation.org or call 1-800-659-1991.

Monday, November 12, 2018 - 9:00am

Let's renew our determination, not only to honor our loved ones, but also to raise awareness.

Take a moment to educate others.
​Post on social media and educate friends and neighbors.
Proudly wear purple to show your support!

YOU have the knowledge to bring awareness to others. Together we can make a difference.

Monday, November 12, 2018 - 6:00pm

This group meets one Monday each month in Manhattan.
Upcoming meeting: Dec. 10

Advance registration is required; email Help@cjdfoundation.org.

Wednesday, November 14, 2018 - 4:00pm

This event will run from 4 to 8 p.m. Pacific
Featuring scientific and medical CJD specialists and a family workshop.

Monday, December 10, 2018 - 6:00pm

This group meets one Monday each month in Manhattan.
Watch this website for info on 2019 dates!

Advance registration is required; email Help@cjdfoundation.org.

Thursday, February 28, 2019 - 9:00am

Today is Rare Disease Day!

Those of us affected by CJD remember and miss our loved ones every day. But today, Rare Disease Day, reminds us to join with others around the world to honor the memory of our loved ones, and to advocate for global awareness and education. 

Please share this message with your friends and families. You have the knowledge to educate others. Together we can raise awareness of prion disease and make a difference!

FIVE ways to commemorate Rare Disease Day:

Friday, July 12, 2019 - 9:00am

Please join us for the 2019 CJD Foundation Family Conference, July 12 to 14 (Advocacy Day, July 15), in Washington, D.C.

For more information, call 1-800-659-1991 or email us at help@cjdfoundation.org.