Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Tuesday, September 22, 2020 - 7:00pm

Join us virtually on Tuesday, September 22 at 7 pm Eastern to hear from CJD Foundation Research Grant Recipients about their research.

Tuesday, September 29, 2020 - 7:00pm

Join us virtually on Tuesday, September 29 at 7 pm Eastern to hear from Anne Smith, Executive Director, Clinical Development at Ionis Pharmaceuticals.

Saturday, October 3, 2020 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.

This year, Strides for CJD will be a VIRTUAL event nationwide. While we’re not able to gather in person, we will unite in spirit to raise much needed awareness and funds for CJD and other prion diseases. 

Monday, October 5, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, October 13, 2020 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Thursday, October 22, 2020 - 7:00pm

Join us virtually on Thursday, October 22 at 7 pm Eastern to hear from CJD Foundation Research Grant Recipients about their research.

Wednesday, October 28, 2020 - 7:00pm

Join us virtually on Wednesday, October 28 at 7 pm Eastern to hear from CJD Foundation Research Grant Recipients about their research.

Monday, November 2, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, November 17, 2020 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Monday, December 7, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, December 15, 2020 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Friday, July 16, 2021 - 8:00am

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.