Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Tuesday, April 13, 2021 - 7:00pm

If you are a family affected by Sporadic Prion Disease, please join us for a Support Group by phone, led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

This group is designed to provide support, education and the opportunity for open dialogue in a secure forum.

To register, please contact our Helpline at 800-659-1991. 

Tuesday, April 20, 2021 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Monday, May 3, 2021 - 6:00pm

This group typically meets one Monday each month in Manhattan, but is currently meeting by phone, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, May 11, 2021 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, May 18, 2021 - 7:00pm

If you are a family affected by Genetic Prion Disease, please join us for a Support Group by phone, led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

This group is designed to provide support, education and the opportunity for open dialogue in a secure forum.

To register, please contact our Helpline at 800-659-1991. 

Tuesday, June 1, 2021 - 8:00am

The CJD Foundation Family Conference is typically held annually in July in Washington, DC. Due to the pandemic, this year's event will be Virtual.

We are pleased to be able to bring conference sessions to you virtually this year, at no cost.

Saturday, October 2, 2021 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Sunday, October 3, 2021 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Saturday, October 9, 2021 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Sunday, October 10, 2021 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Friday, July 15, 2022 - 8:00am

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.