Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Wednesday, January 23, 2019 - 8:00pm

You're invited to join this telephone support group for families affected by Gerstmann-Sträussler-Scheinker Disease, including caregivers, family members, and those who are mutation positive or at risk. The call begins at 8 p.m. Eastern/5 p.m. Pacific. To register, email help@CJDFoundation.org.

Monday, February 4, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: March 4, April 8, May 13, June 3, September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Tuesday, February 5, 2019 - 7:00pm

Join us for this teleconference support group with Valerie Sim, MD, FRCPC, Associate Professor, University of Alberta, and 2016 Recipient of CJD Foundation Research Grant. Dr. Sim will give an overview of her work, and answer questions about prion disease and research highlights.

Wednesday, February 20, 2019 - 8:00pm

You're invited to join this telephone support group for families affected by Gerstmann-Sträussler-Scheinker Disease, including caregivers, family members, and those who are mutation positive or at risk. The call begins at 8 p.m. Eastern/5 p.m. Pacific.
To register, email help@CJDFoundation.org.

Thursday, February 28, 2019 - 9:00am

Today is Rare Disease Day!

Those of us affected by CJD remember and miss our loved ones every day. But today, Rare Disease Day, reminds us to join with others around the world to honor the memory of our loved ones, and to advocate for global awareness and education. 

Please share this message with your friends and families. You have the knowledge to educate others. Together we can raise awareness of prion disease and make a difference!

FIVE ways to commemorate Rare Disease Day:

Monday, March 4, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: April 8, May 13, June 3, September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Monday, April 8, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: May 13, June 3, September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Monday, May 13, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: June 3, September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Monday, June 3, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Friday, July 12, 2019 - 9:00am

Please join us for the 2019 CJD Foundation Family Conference, July 12 to 14 (Advocacy Day, July 15), in Washington, D.C.

To learn more about the CJD Foundation Family Conference, visit https://cjdfoundation.org/cjdf-family-conference-0.

To view presentations by our Research Grant Recipients at previous years' Family Conferences, visit https://cjdfoundation.org/grant-recipients.

For more information about this annual event and how you can become a Conference Sponsor, call 1-800-659-1991 or email us at help@cjdfoundation.org.

Monday, September 9, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 5, 2019 - 9:00am

Locations to be announced soon. For more information, visit http://www.strides4cjd.com.

Monday, October 7, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 12, 2019 - 9:00am

Locations to be announced soon. For more information, visit http://www.strides4cjd.com.

Monday, November 4, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: December 2
Advance registration is required; email Help@CJDFoundation.org.

Monday, December 2, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Last meeting of 2019! Watch here for 2020 dates!
Advance registration is required; email Help@CJDFoundation.org.