Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Strides for CJD 2023 - Weekend 1
Saturday, October 7, 2023 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Virtual Support Group for Current Caregivers of a CJD/Prion Disease Patient - EASTERN TIME
Tuesday, October 10, 2023 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Virtual Caregivers’ Support Group.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Strides for CJD 2023 - Weekend 2
Saturday, October 14, 2023 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Western Region Virtual Support Group - PACIFIC TIME
Tuesday, October 17, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Genetic Prion Disease Virtual Support Group - EASTERN TIME
Wednesday, October 25, 2023 - 7:00pm

FOR GENETIC FAMILIES ONLY

If you are a family affected by Genetic Prion Disease, please join us for a Peer-Led Virtual Support Group.

This group is designed to provide support and the opportunity for open dialogue in a secure forum.

To register, please contact our Helpline at 800-659-1991 or email help@cjdfoundation.org. 

Waitlist Only - Bereavement Support Group (4 Session Series): Understanding the Uniqueness of a CJD loss
Thursday, October 26, 2023 - 7:00pm

This session is full and has a waitlist.

Waitlist Only - Bereavement Support Group (4 Session Series): Coping with Holidays and Special Occasions
Thursday, November 2, 2023 - 7:00pm

This session is full and has a waitlist.

Eastern Region Virtual Support Group - EASTERN TIME
Monday, November 6, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Genetic Prion Disease Q&A Session with Dr. Appleby
Tuesday, November 7, 2023 - 7:00pm

 This event is at 7pm Eastern, 4pm Pacific

FOR GENETIC FAMILIES ONLY

If you are a family affected by Genetic Prion Disease, please join us for a Q&A led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

This group is designed to provide support and the opportunity for open dialogue in a secure forum.

To register, please contact our Helpline at 800-659-1991 or email help@cjdfoundation.org. 

Waitlist Only - Bereavement Support Group (4 Session Series): Cherishing Memories of Your Loved One Before Their Illness
Thursday, November 9, 2023 - 7:00pm

This session is full and has a waitlist.

International CJD Awareness Day
Sunday, November 12, 2023 - 5:00am

Let's renew our determination, not only to honor our loved ones, but also to raise awareness.

On International CJD Awareness Day, November 12:

  • Take a moment to educate others.
  • ​Post on social media and educate friends and neighbors.
  • Proudly wear purple to show your support!

YOU have the knowledge to bring awareness to others. Together we can make a difference.

Virtual Support Group for Current Caregivers of a CJD/Prion Disease Patient - EASTERN TIME
Tuesday, November 14, 2023 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Virtual Caregivers’ Support Group.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Waitlist Only - Bereavement Support Group (4 Session Series): Paying Tribute to Your Loved One’s Memory
Thursday, November 16, 2023 - 7:00pm

This session is full and has a waitlist.

Western Region Virtual Support Group - PACIFIC TIME
Wednesday, November 29, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Sporadic Prion Disease Q&A Session with Dr. Appleby
Tuesday, December 5, 2023 - 7:00pm

If you would like to learn more about sporadic prion disease, please join us for a Q&A session led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

To register, please contact our Helpline at 800-659-1991 or help@cjdfoundation.org.

Virtual Support Group for Current Caregivers of a CJD/Prion Disease Patient - EASTERN TIME
Tuesday, December 12, 2023 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Virtual Caregivers’ Support Group.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Western Region Virtual Support Group - PACIFIC TIME
Wednesday, December 27, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Genetic Prion Disease Virtual Support Group - EASTERN TIME
Wednesday, December 27, 2023 - 7:00pm

FOR GENETIC FAMILIES ONLY

If you are a family affected by Genetic Prion Disease, please join us for a Peer-Led Virtual Support Group.

This group is designed to provide support and the opportunity for open dialogue in a secure forum.

To register, please contact our Helpline at 800-659-1991 or email help@cjdfoundation.org. 

Rare Disease Day
Wednesday, February 28, 2024 - 9:00am

Those of us affected by CJD remember and miss our loved ones every day. But Rare Disease Day, February 28, reminds us to join with others around the world to honor the memory of our loved ones, and to advocate for global awareness and education. 

You have the knowledge to educate others. Together we can raise awareness of prion disease and make a difference!

 

2024 CJD Foundation Family Conference
Friday, July 19, 2024 - 12:00pm

Save the Date for the 2024 CJD Foundation Family Conference: Friday, July 19 – Sunday, July 21, 2024

Advocacy day: Monday, July 22, 2024