Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Monday, October 3, 2022 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet by phone at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 8, 2022 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Tuesday, October 11, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Thursday, October 13, 2022 - 7:00pm

If you would like to learn more about genetic prion disease, please join us for a webinar via Zoom led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

You will have the opportunity to ask questions to Dr. Appleby and other families.

To register, please contact our Helpline at 800-659-1991 or help@cjdfoundation.org.

Tuesday, October 25, 2022 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet by phone at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Monday, November 7, 2022 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet by phone at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Wednesday, November 9, 2022 - 7:00pm

Families who lose someone to Prion Disease/CJD often experience many elements of bereavement, during caregiving as well as after the person has passed.  The rapid progression of CJD, challenges in obtaining a diagnosis, the need to adapt to diverse symptoms, and shock over how quickly the person transitioned from good health to end of life can complicate the grieving process.   It can be helpful to examine those experiences as family members process their losses, from symptom onset through death and bereavement.

To register, please contact our Helpline at 800-659-1991 or help@cjdfoundation.org.

Thursday, November 10, 2022 - 7:00pm

If you would like to learn more about sporadic prion disease, please join us for a Q&A session led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

To register, please contact our Helpline at 800-659-1991 or help@cjdfoundation.org.

Saturday, November 12, 2022 - 5:00am

Let's renew our determination, not only to honor our loved ones, but also to raise awareness.

On International CJD Awareness Day, November 12:

  • Take a moment to educate others.
  • ​Post on social media and educate friends and neighbors.
  • Proudly wear purple to show your support!

YOU have the knowledge to bring awareness to others. Together we can make a difference.

Tuesday, November 15, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, November 22, 2022 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet by phone at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Monday, December 5, 2022 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet by phone at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, December 13, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, December 20, 2022 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet by phone at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Friday, July 14, 2023 - 3:00pm

Save the Date for the 2023 CJD Foundation Family Conference: Friday, July 14 – Sunday, July 16, 2023

Advocacy day: Monday, July 17