Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Wednesday, March 27, 2019 - 8:00pm
Monday, April 8, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: May 13, June 3, September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Thursday, April 11, 2019 - 4:00pm

Featuring a Family Workshop and Q&A discussion, with Debbie Yobs; Brian Appleby, MD; James Mastrianni, MD, PhD; and Joel Watts, PhD.
There is no charge to attend this forum, but registration is required by Tuesday, April 9. Call 1-800-659-1991 or email Help@CJDFoundation.org.
This workshop is open to all families affected by a prion disease and is designed to provide support, education, and the opportunity for open dialogue in a secure forum.

Wednesday, April 24, 2019 - 8:00pm
Thursday, April 25, 2019 - 5:00pm

Family workshops are open to all families affected by a prion disease and are designed to provide support, education, and the opportunity for open dialogue in a secure forum. 

Location: Indianapolis Marriott East, 7202 East 21st Street, Indianapolis, IN 46219

Monday, May 13, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: June 3, September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Wednesday, May 29, 2019 - 8:00pm
Monday, June 3, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Wednesday, June 26, 2019 - 8:00pm
Friday, July 12, 2019 - 9:00am

Please join us for the 2019 CJD Foundation Family Conference, July 12 to 14 (Advocacy Day, July 15), in Washington, D.C.

To learn more about the CJD Foundation Family Conference, visit https://cjdfoundation.org/cjdf-family-conference-0.

To view presentations by our Research Grant Recipients at previous years' Family Conferences, visit https://cjdfoundation.org/grant-recipients.

For more information about this annual event and how you can become a Conference Sponsor, call 1-800-659-1991 or email us at help@cjdfoundation.org.

Monday, September 9, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 5, 2019 - 9:00am

Locations to be announced soon. For more information, visit http://www.strides4cjd.com.

Monday, October 7, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 12, 2019 - 9:00am

Locations to be announced soon. For more information, visit http://www.strides4cjd.com.

Monday, November 4, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: December 2
Advance registration is required; email Help@CJDFoundation.org.

Tuesday, November 12, 2019 - 9:00am

Let's renew our determination, not only to honor our loved ones, but also to raise awareness.

Take a moment to educate others.
​Post on social media and educate friends and neighbors.
Proudly wear purple to show your support!

YOU have the knowledge to bring awareness to others. Together we can make a difference.

Monday, December 2, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Last meeting of 2019! Watch here for 2020 dates!
Advance registration is required; email Help@CJDFoundation.org.