Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Monday, July 11, 2022 - 6:00pm

This virtual support group is for anyone in the Eastern U.S. and will meet by phone at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, July 19, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, July 26, 2022 - 6:00pm

This virtual support group is for anyone in the Western U.S. and will meet by phone at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Monday, August 1, 2022 - 6:00pm

This virtual support group is for anyone in the Eastern U.S. and will meet by phone at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, August 9, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, August 23, 2022 - 6:00pm

This virtual support group is for anyone in the Western U.S. and will meet by phone at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Monday, September 12, 2022 - 6:00pm

This virtual support group is for anyone in the Eastern U.S. and will meet by phone at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, September 20, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, September 27, 2022 - 6:00pm

This virtual support group is for anyone in the Western U.S. and will meet by phone at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 1, 2022 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Monday, October 3, 2022 - 6:00pm

This virtual support group is for anyone in the Eastern U.S. and will meet by phone at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 8, 2022 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Tuesday, October 11, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, October 25, 2022 - 6:00pm

This virtual support group is for anyone in the Western U.S. and will meet by phone at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Monday, November 7, 2022 - 6:00pm

This virtual support group is for anyone in the Eastern U.S. and will meet by phone at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, November 15, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, November 22, 2022 - 6:00pm

This virtual support group is for anyone in the Western U.S. and will meet by phone at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Monday, December 5, 2022 - 6:00pm

This virtual support group is for anyone in the Eastern U.S. and will meet by phone at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, December 13, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, December 20, 2022 - 6:00pm

This virtual support group is for anyone in the Western U.S. and will meet by phone at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.