Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to Abby at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

Friday, July 14, 2017 - 9:00am

The 2017 CJD Foundation Family Conference in Washington, D.C., is July 14 to 16, with visits to Capitol Hill on July 17. To view our brochure or registration formCLICK HERE.

Saturday, August 5, 2017 - 8:00am

This event is held in memory of Jon Fansler and all those lost to CJD, to raise awareness of CJD and help fund research for a cure. Blue River Memorial Ball Park, 725 Lee Blvd., Shelbyville, IN 46176. Registration begins at 8 a.m. The run/walk begins at 9 a.m. For more information, go to http://huntforacurecjd.com.

Sunday, September 17, 2017 - 2:00pm

You are invited to the 9th Annual "ROCK4RV" CJD Benefit Concert, in memory of Robert (Bob) Vitanza, who was taken by Creutzfeldt-Jakob Disease (CJD) in 2008. All funds raised at the event will be donated directly to the CJD Foundation, Inc. (www.cjdfoundation.org), a 501(c)(3) organization that is committed to supporting individuals and families affected by this rare and fatal brain disease. Please join us for this rock-and-roll celebration of Bob’s life!

Saturday, October 7, 2017 - 6:00pm

You're invited to the 5th Annual Espo's Hope for CJD, "A Night in Italy" Gala on Saturday, October 7.
Crowne Plaza Grand Ballroom in Green Tree, PA.
Details coming soon!
Visit http://www.esposhope.com/ to see pics from previous galas!

Saturday, October 14, 2017 - 9:00am

Our third annual Strides for CJD event is scheduled for October 14, 2017. Supporters from all over the country will run/walk to make a difference for this rare neurodegenerative disorder. Stay tuned for details and event locations!

Tuesday, October 17, 2017 - 7:00pm

The next CJD Foundation Teleconference Support Group call -- featuring speaker Deana Simpson -- will be Tuesday, October 17, at 7 p.m. Eastern Standard Time. This call is ONLY for families of patients with Genetic CJD.

To register for this event and receive dial-in instructions and a participant code, please call 1-800-659-1991 or email help@cjdfoundation.org. We hope you'll find this call helpful and informative.

Friday, July 13, 2018 - 9:00am

Please join us for the 2018 CJD Foundation Family Conference, July 13 to 15, in Washington, D.C.