Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Saturday, October 2, 2021 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Learn more about these events taking place on Saturday, October 2: Arlington, TXAuburn, CABoston, MA, Brownton, MNCharleston, WVChicago Area, ILMorris Plains, NJ, and St. Louis, MO.

Sunday, October 3, 2021 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Learn more about these events taking place on Sunday, October 3: Bakersfield, CA, and Seattle, WA.

Monday, October 4, 2021 - 6:00pm

This group typically meets one Monday each month in Manhattan, but is currently meeting by phone, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Wednesday, October 6, 2021 - 7:00pm

Speakers:

Valerie Sim, MD, FRCPC, Centre for Prions and Protein Folding Diseases, University of Alberta, Canada
“Strain-specific pathology and spread in prion organotypic slice culture assay infected with different strains of Creutzfeldt-Jakob Disease”
Stephanie Booth, PhD, Public Health Agency of Canada and University of Manitoba
“Detection and characterization of rare strains of sporadic Creutzfeldt-Jakob Disease using a suite of novel biological and biochemical tools”
Moderator: Joel Watts

Saturday, October 9, 2021 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Learn more about these events taking place on Saturday, October 9: Akron, OHDenver, COJohnsonburg, PAJoppa, MDPittsburgh, PAPortland, OR, and Saratoga, NY.

Sunday, October 10, 2021 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Learn more about this event, taking place Sunday, October 10: Fairfax, VA.

Tuesday, October 12, 2021 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Wednesday, October 13, 2021 - 7:00pm

Speakers:

Emiliano Biasini, PhD, Dulbecco Telethon Laboratory of Prions and Amyloids, Department of Cellular, Computational & Integrative Biology (CIBIO), University of Trento, Italy 
“Pharmacological Degraders for the Cellular Prion Protein”
Jason Thomas Duskey, PhD, University of Modena and Reggio Emilia, Modena, Italy 
“Optimization of nanoparticle-mediated brain delivery of a tetracationic porphyrin with potent anti-prion activities”
Holger Wille, PhD, University of Alberta, Centre for Prions and Protein Folding Diseases
“Evaluating passive immunotherapy in prion-infected transgenic mice expressing human PrP”
Moderator: Prof. Richard Knight, Emeritus Professor of Clinical Neurology, CCBS, University of Edinburgh

Monday, November 1, 2021 - 6:00pm

This group typically meets one Monday each month in Manhattan, but is currently meeting by phone, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, November 9, 2021 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Monday, December 6, 2021 - 6:00pm

This group typically meets one Monday each month in Manhattan, but is currently meeting by phone, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, December 14, 2021 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Friday, July 15, 2022 - 8:00am

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.