Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Saturday, September 21, 2019 - 5:00pm

Rock4RV CJD Benefit Concert in memory of Robert (Bob) Vitanza. All proceeds to The Creutzfeldt-Jakob Disease (CJD) Foundation, Inc.

Saturday, October 5, 2019 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Monday, October 7, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 12, 2019 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Monday, November 4, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: December 2
Advance registration is required; email Help@CJDFoundation.org.

Tuesday, November 12, 2019 - 9:00am

Let's renew our determination, not only to honor our loved ones, but also to raise awareness.

Take a moment to educate others.
​Post on social media and educate friends and neighbors.
Proudly wear purple to show your support!

YOU have the knowledge to bring awareness to others. Together we can make a difference.

Monday, December 2, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Last meeting of 2019! Watch here for 2020 dates!
Advance registration is required; email Help@CJDFoundation.org.

Friday, July 10, 2020 - 8:00am

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.