Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Monday, February 6, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Wednesday, February 15, 2023 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Virtual Caregivers’ Support Group.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, February 21, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, February 28, 2023 - 7:00pm

FOR GENETIC FAMILIES ONLY

If you are a family affected by Genetic Prion Disease, please join us for a Peer-Led Virtual Support Group.

This group is designed to provide support and the opportunity for open dialogue in a secure forum.

To register, please contact our Helpline at 800-659-1991 or email help@cjdfoundation.org

Monday, March 6, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, March 14, 2023 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Virtual Caregivers’ Support Group.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, March 21, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Wednesday, March 22, 2023 - 7:00pm

FOR GENETIC FAMILIES ONLY

If you are a family affected by Genetic Prion Disease, please join us for a Peer-Led Virtual Support Group.

This group is designed to provide support and the opportunity for open dialogue in a secure forum.

To register, please contact our Helpline at 800-659-1991 or email help@cjdfoundation.org

Friday, July 14, 2023 - 3:00pm

Save the Date for the 2023 CJD Foundation Family Conference: Friday, July 14 – Sunday, July 16, 2023

Advocacy day: Monday, July 17

Saturday, October 7, 2023 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Saturday, October 14, 2023 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.