Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to Abby at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

Tuesday, October 24, 2017 - 7:00pm

These evening conference calls allow families to ask questions of a prion disease expert, learn from the experience of other families, and lend support to one another. This call will be led by Dr. Brian Appleby. To register
and receive dial-in instructions and a participant code, call 1‑800‑659-1991 or email leslie@cjdfoundation.org
.

Saturday, October 28, 2017 - 10:00am

A Halloween-themed fun run/walk, kids events and more, in memory of locals Davey Kock, Sharon Thompson and Lisa Neufeld. Saturday, October 28, from 10 a.m. to 1 p.m. at the Westside Community Building, Main Street, Westside, Iowa. Click on the link above for details!

Thursday, November 2, 2017 - 5:00pm

Courtyard by Marriott Charleston, 35 Lockwood Drive, Charleston SC 29401
5 to 7:30 p.m. Eastern Time

5 to 5:30 p.m. Casual Reception
5:30 to 7:30 p.m. Question and Answer Session

Dr. Brian Appleby, Co-Director, National Prion Disease Pathology Surveillance Center
Debbie Yobs, President, CJD Foundation
Amanda Baxley Kalinsky, RN - CJD Foundation Board Member

Family workshops are open to all families affected by a prion disease and are designed to provide support, education, and the opportunity for open dialogue in a secure forum. These workshops are sponsored in part by The Centers for Disease Control and Prevention and generous gifts from our CJD families. Please join us!  To register for a family workshop as our guest (no charge), call 1‑800-659-1991 or email leslie@cjdfoundation.org. Registration is required.

Monday, November 6, 2017 - 6:00pm

This group meets one Monday each month in Manhattan. 2017 dates include: November 6 and December 4.  For more information, email Help@cjdfoundation.org.

Sunday, November 12, 2017 - 9:00am

Let's renew our determination, not only to honor our loved one's memory, but to push for better awareness and education. Take a moment to educate others. Post on your Facebook page and educate friends and neighbors. Proudly wear purple to show your support! YOU have the knowledge to bring awareness to others. Together we can bring awareness and make a difference.

Tuesday, November 14, 2017 - 7:00pm

These evening conference calls allow families to ask questions of a prion disease expert, learn from the experience of other families, and lend support to one another. This call will be led by Katrina Hallmark, Ph.D. To register
and receive dial-in instructions and a participant code, call 1‑800‑659-1991 or email leslie@cjdfoundation.org
.

Tuesday, November 28, 2017 - 9:00am

We at the CJD Foundation are thankful for all who support our shared cause, and we hope you will keep us in mind on Giving Tuesday. Giving Tuesday is a movement that inspires people to take collaborative action to improve their local communities, give back in better, smarter ways to the charities and causes they celebrate and help create a better world.  To join the celebration of giving, please click here to Donate to support others and fight the battle against CJD.

Monday, December 4, 2017 - 6:00pm

This group meets one Monday each month in Manhattan. This is the last meeting in 2017. Check back soon for 2018 dates! For more information, email Help@cjdfoundation.org.

Tuesday, December 5, 2017 - 7:00pm

These evening conference calls allow families to ask questions of a prion disease expert, learn from the experience of other families, and lend support to one another. This call will be led by Dr. Joel Watts, of the University of Toronto, who will discuss his work and developments in the prion field. To register and receive dial-in instructions and a participant code, call 1‑800‑659-1991 or email leslie@cjdfoundation.org.

Wednesday, February 28, 2018 - 9:00am

Rare Disease Day takes place every year on the last day of February (February 28 or February 29 in a leap year)—the rarest date on the calendar—to underscore the nature of rare diseases and what patients face.  It was established in Europe in 2008 and is now observed in more than 80 nations. For more information about Rare Disease Day in the U.S., visit www.rarediseaseday.us.

Friday, July 13, 2018 - 9:00am

Please join us for the 2018 CJD Foundation Family Conference, July 13 to 15, in Washington, D.C.