Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Monday, December 7, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, December 8, 2020 - 7:00pm

If you are a family affected by Sporadic Prion Disease, please join us for a Support Group by phone, led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

This group is designed to provide support, education and the opportunity for open dialogue in a secure forum.

To register, please contact our Helpline at 800-659-1991. 

Wednesday, December 9, 2020 - 7:00pm

This Bereavement group is full. We plan to announce dates for a new Bereavement group in January.  Please contact us to join the waiting list.

If you have lost a loved one to Prion Disease/CJD within the past two years, you're invited to participate in a telephone support group program (4 sessions).Topics will include the uniqueness of a CJD loss, handling holidays and special occasions, remembering the person before their illness, and honoring their memory.

Openings are limited and participants must commit to attending all four sessions.  Limited to 2 members per family, and each will need to dial in separately.  Preference will be given to those who have lost their loved one within the past 24 months.

To register, please email help@cjdfoundation.org or call 1-800-659-1991.

Tuesday, December 15, 2020 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Friday, July 16, 2021 - 8:00am

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.