Upcoming Events

Click here for our Calendar of Events.

From our monthly in-person Support Group to our annual Family Conference and Strides for CJD event, you'll find everything you need here for CJD and prion disease education, advocacy, fundraising and support!

If you are hosting a Family Fundraiser to help the CJD Foundation fund education, research and family support programs, send your event info to us at help@cjdfoundation.org. We'll post it here and in our new e-newsletter!

If you want to start your own fundraising page, click here.

Wednesday, May 29, 2019 - 8:00pm

For families affected by Gerstmann-Sträussler-Scheinker (GSS) Disease.

Monday, June 3, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Wednesday, June 26, 2019 - 8:00pm

For families affected by Gerstmann-Sträussler-Scheinker (GSS) Disease.

Friday, July 12, 2019 - 9:00am

Please join us for the 2019 CJD Foundation Family Conference, July 12 to 14 (Advocacy Day, July 15), in Washington, D.C.

To learn more about the CJD Foundation Family Conference, visit https://secure.qgiv.com/event/conference-2019/.

To view presentations by our Research Grant Recipients at previous years' Family Conferences, visit https://cjdfoundation.org/grant-recipients.

For more information about this annual event and how you can become a Conference Sponsor, call 1-800-659-1991 or email us at help@cjdfoundation.org.

Monday, September 9, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 5, 2019 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Monday, October 7, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Saturday, October 12, 2019 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. For more information, visit http://www.strides4cjd.com.

Monday, November 4, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: December 2
Advance registration is required; email Help@CJDFoundation.org.

Tuesday, November 12, 2019 - 9:00am

Let's renew our determination, not only to honor our loved ones, but also to raise awareness.

Take a moment to educate others.
​Post on social media and educate friends and neighbors.
Proudly wear purple to show your support!

YOU have the knowledge to bring awareness to others. Together we can make a difference.

Monday, December 2, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Last meeting of 2019! Watch here for 2020 dates!
Advance registration is required; email Help@CJDFoundation.org.