Your voice is crucial in raising awareness of CJD and what needs to be done to make a difference! Join us in Washington, DC to meet with your legislative offices before the Appropriations bills are finalized. You will receive training on how to be an advocate in order to to educate your legislator about how CJD impacts families and share the CJD community’s legislative requests, including the importance of CJD surveillance and research funding.
Fifteen Strides for CJD events took place across the country this year with over 2,400 people participating! Nearly $500,000 was raised to support family programs, research grants and medical education. Congratulations to everyone who worked to make this year’s events a success! Thank you for your dedication to raising awareness of prion disease and honoring loved ones.
