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Learn more about prion disease.

The CJD Foundation organizes Grand Round presentations, Infection Control Seminars, and Funeral Director and Embalmer Education. We offer this opportunity at your facility or remotely at no charge to you. We provide the speaker and cover travel costs if necessary. We are a non-profit organization and part of our mission is to provide education and support to families and medical professionals caring for suspected CJD patients. Our Medical Education Program is facilitated by prion disease experts.

Key Objectives for Medical Grand Rounds include:

  • Understand key elements of diagnosing CJD
  • Demonstrate strategies for managing patients with CJD
  • Demonstrate knowledge regarding CJD risks

Presentation topics for Medical Grand Rounds include:

  • CJD diagnosis
  • Importance of a brain-only autopsy
  • Patient referral, i.e. “what to do next?”

The presentation topics for Infection Control and Nurses include the following objectives:

  • Identify the types of Creutzfeldt-Jakob Disease (CJD)
  • Describe the symptoms of CJD and symptom management techniques
  • State surgical procedure considerations and related Infection Prevention measures
  • Outline the instrument reprocessing steps
  • Identify resources available when caring for a patient and/or family impacted by CJD

Prion Disease: An Overview for Funeral Directors and Embalmers

  • History/Purpose of the National Prion Disease Pathology Surveillance Center
  • What exactly is prion disease?
  • Types of prion disease
  • Supporting Families with probable diagnosis
  • Risk – Funeral Directors / Embalmers
  • Chronic Wasting Disease (CWD)

These topics should be of great interest to clinicians in the Departments of Neurology, Psychiatry, Pathology and Laboratory Medicine, Hospital Medicine, and Emergency Medicine. It is our hope to include these groups in this meeting.