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We’re actively communicating with legislators.

You can help.

Several times each year, the CJD Foundation visits Capitol Hill to ensure legislators remain cognizant of the impact of CJD in their districts, and what they can do to support surveillance and research.

We hold our CJD Advocacy Day in July to coincide with the CJD Foundation’s Annual Family Conference.

We’re advocating for additional funding for Prion Disease Surveillance and research.

This funding is critical to monitor cases of Creutzfeldt-Jakob Disease (CJD). In addition, we need the Senate’s support to encourage the NIH to designate prion disease as one of the “Alzheimer’s Disease Related Dementias (ADRDs).”

How you can help

Raise awareness about CJD and Advocacy Day through social media!

Wear a CJD awareness bracelet or Strides for CJD T-shirt on key dates, such as Rare Disease Day (Feb. 28), Advocacy Day (July), Strides for CJD Day (October), and International CJD Awareness Day (Nov. 12)

Want to start a fundraiser?