Amanda’s Story Follow the journey of Amanda and her husband, Bradley, as they fight to have children free of the gene that causes Gerstmann-Straussler-Scheinker disease, a prion disease that has “stalked her family for generations.”
Charlotte and her family have hosted several fundraisers in Massachusetts in memory of their beloved Amale, including a pop-up shopping benefit, a fundraiser dinner and the annual Hope for CJD charity 5K walk.
The past several years, Byron Jones, a Dallas Cowboys Cornerback, has chosen to raise awareness of and support The CJD Foundation through the NFL’s My Cause My Cleats Program. The players wear their designed cleats in
Harvey L. Hall, Bakersfield, California’s 25th Mayor, and an EMS pioneer, as the founder of Hall Ambulance Service, lost his life to CJD on May 19, 2018, just two weeks and seven hours after diagnosis.He was
Trevor is a producer and editor. He is known for his production of the television series, “Wahlburgers” and “Alaska: The Last Frontier,” but we think his greatest work is the 2014 film, “One in a Million:
Brooke is a Research Grant Recipient whose father had sporadic CJD. She is fighting for a cure and wrote the article “How I learned to stop researching and live in the moment” for the Neurology Journal.
Kristen’s mother’s CJD symptoms started when she noticed that her slippers kept dropping off her feet when she was sitting at a high-top table and then slowly other minor symptoms of confusion and losing balance began her interaction with a neurologist.