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Learn more about prion disease.

Watch our video.

  • We can send you a free DVD copy of the video. For families seeking genetic counseling, please contact our Helpline for suggestions on finding and working with a genetic counseling professional.

If you are a Genetic Counselor who would like to learn more about this rare, invariably fatal brain disease read:

Genetic counseling for prion disease: Updates and best practices
by Jill S. Goldman and Sonia M. Vallabh, July 12, 2022.

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© 2024 The CJD Foundation Inc. (CJDF) is a registered 501(c)(3) non-profit organization.

This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.