
Adriano Aguzzi, MD and Vangelis Bouris, MSc
Grant Title: Investigating the role of BLOC-1 complex in prion disease
Location: Institute for the Science of the Aging Brain (ISAB), St. Gallen, Switzerland
Grant Year: 2026
Contributed by: Tim Molloy and Family
Established in 2019

Grant Title: Investigating the role of BLOC-1 complex in prion disease
Location: Institute for the Science of the Aging Brain (ISAB), St. Gallen, Switzerland
Grant Year: 2026

Grant Title: DNA Extraction for Global Genome-Wide Association Studies (GWAS) in Creutzfeldt-Jakob Disease
Location: MRC Prion Unit and National Prion Clinic, University College London (UCL) Institute of Prion Diseases
Grant Year: 2026

Grant Title: The structural basis of prion-induced synaptotoxicity
Location: Imperial College London (ICL)
Grant Year: 2026

Grant Title: New strains, new risks: evaluating the host range and zoonotic potential of CWD prion strains
Location: The University of Texas Health Science Center at Houston
Grant Year: 2026

Grant Title: Characterizing Early Synaptic Dysfunction in Human Prion Disease Using a Human iPSC-Derived Neuronal Model
Location: University of California, San Diego
Grant Year: 2026

Grant Title: Haematopoietic stem cell gene therapy as a novel therapeutic for CNS prion disease
Location: The Roslin Institute & Royal (Dick) School of Veterinary Studies, University of Edinburgh
Grant Year: 2026

Grant Title: Development of RNA Splicing Modulators for the Treatment of Creutzfeldt-Jakob Disease (CJD)
Location: University of Chicago
Grant Year: 2026

Grant Title: Hypomorphic low PrP expressing mice as models for prion replication and native function
Location: Broad Institute of MIT and Harvard
Grant Year: 2026

Grant Title: Using a Kuru-Protective PrP Mutation as a Novel Prion Therapy
Location: Edgar Minas Housepian Professor & Chair, Department of Biochemistry & Cell Biology, Boston University/Chobanian & Avedisian School of Medicine
Grant Year: 2026

Grant Title: Early vs late intervention: PrP-lowering therapy stage-dependent outcomes in sCJD and GSS mouse models
Location: Center for Cooperative Research in Biosciences (CIC bioGUNE), Basque Research and Technology Alliance (BRTA), Derio, Spain
Grant Year: 2026

Franklin, MA

Bloomington, IN
Donald Friedman shares the story of caring for his sister, Phyllis, in Still Phyllis: A Caregiver’s Memoir of Dementia and Creutzfeldt-Jakob Disease.
David Langan captured the CJD journey of his wife, Zyvonne, in All is Well: Living Through Losing One You Love.

Evelyn M. Kendall lost her life to CJD on August 2, 2019.
Evelyn’s family was the 2nd highest fundraising team nationally in 2020 and the top fundraising team for Strides for CJD – Arlington, TX in 2021.

Amy Collins lost her life to CJD on December 14, 2018.
The Collins Family was the 3rd highest fundraising team nationally in 2021, the 4th highest fundraising team nationally in 2022, 2023, and 2024, and the 2nd highest fundraising team nationally in 2025.

Jerry Yaffa lost his life to CJD on June 21, 2005.
The Yaffa Family was the 2nd highest fundraising team nationally in 2021 and the 3rd highest fundraising team nationally in 2022 and 2023, the 2nd highest fundraising team nationally in 2024, and the top fundraising team nationally in 2025.
Back to List of Grants Research Grants Supported Back to list Memorial Grants
Back to List of Grants Research Grants Supported Back to list Memorial Grants

Bridgeport, WV