Prion Disease Advocacy and How You Can Help Virtual Workshop – EASTERN TIME
If you are planning to attend Advocacy Day in Washington, DC, on March 8-9, 2027, or if you want to help from home, please join us for this workshop with advisors from Akin, CJD Foundation staff, and families who have participated in the past. Learn:
- Why we visit Capitol Hill and what we request
- What we have achieved through advocacy
- How to share your story and educate your Congress members about the impact of CJD/prion disease
- How Congress and the appropriations process work
- Tips for advocacy visits
- Planning for Advocacy Day 2027 (or remote advocacy)
Even if you are just curious about the CJD Advocacy process, you are welcome to join this educational webinar.
To register, email help@cjdfoundation.org. Please include your name, your loved one’s name, and the teleconference you are registering for.
