Alex’s Family Story
Alex wrote the script and directed the film Farewell Fire, a story about life, death, and the perspective that nature gives us on how to live, inspired by his father who passed away from Creutzfeldt-Jakob Disease in 2020.
The Dr. Jim Barnette Memorial Grant
Contributed by: Deanna Barnette
Established in 2025
The Judy Carns Memorial Grant
Contributed by: James Carns
Established in 2025
Heather Tabellion
Program Assistant
Alyssa Block, PhD
Grant Title: Refined transgenetic approaches to investigate selective adaptation of human prions during intracranial and peripheral transmissions
Location: Prion Research Center, Colorado State University
Grant Year: 2025
Jose Andres Alepuz Guillen, PhD
Grant Title: Characterization of synaptic abnormalities in iPSC-derived neurons from E200K carriers
Location: Boston University Chobanian & Avedisian School of Medicine
Grant Year: 2025
Gianluigi Zanusso, MD, PhD
Grant Title: Multi-center assessment of olfactory swab procedure performed by non-otolaryngologists for improving and simplifying human prion disease diagnosis
Location: Department of Neuroscience, Biomedicine and Movement Sciences, University of Verona, Verona, Italy
Grant Year: 2025
Joel Watts, PhD
Grant Title: Engineered biosensors for improved prion detection
Location: Tanz Centre for Research in Neurodegenerative Diseases and Department of Biochemistry, University of Toronto
Grant Year: 2025
Jakub Soukup, PhD
Grant Title: Higher-resolution visualization of prion fibrils in neurons and extracellular vesicles using state-of-the-art Cryo-TEM and FIB-SEM imaging
Location: Rocky Mountain Laboratories, NIAID, NIH
Grant Year: 2025
Nina Oberbeck, PhD, Vice President of Translational Sciences
Grant Title: Assessing efficacy of a PrP-lowering Molecular Gate as a therapeutic for prion disease
Location: Gate Bioscience
Grant Year: 2025
