Flowers Family’s Story
Jeremy Flowers was just 49 years old when CJD took his life—only 43 days after his diagnosis.
What began as small memory lapses and balance issues quickly became something much more serious. Like many families facing rare diseases, Jeremy’s wife Jenny struggled to find answers.
Read Jenny’s story and learn how the CJD Foundation supported the Flowers Family during their most difficult days.
The Kristine Sandler Memorial Grant
Contributed by: The Sandler Family
This grant was established in 2026.
The Madeleine Roberts Memorial Grant
Contributed by: The Roberts Family
This grant was established in 2026.
The Ruth Raskin Memorial Grant
Contributed by: The Raskin Family
This grant was established in 2026.
The Steve Lewine Memorial Grant
Contributed by: The Lewine Family
This grant was established in 2026.
The Janie Johnston Memorial Grant
Contributed by: Kristal Enter
This grant was established in 2026.
The Arthur Dubin Memorial Grant
Contributed by: The Dubin Family
This grant was established in 2026.
The Colleen Berg Memorial Grant
Contributed by: The Berg Family
This grant was established in 2026.
Adriano Aguzzi, MD and Vangelis Bouris, MSc
Grant Title: Investigating the role of BLOC-1 complex in prion disease
Location: Institute for the Science of the Aging Brain (ISAB), St. Gallen, Switzerland
Grant Year: 2026
Simon Mead, PhD
Grant Title: DNA Extraction for Global Genome-Wide Association Studies (GWAS) in Creutzfeldt-Jakob Disease
Location: MRC Prion Unit and National Prion Clinic, University College London (UCL) Institute of Prion Diseases
Grant Year: 2026