It is hard to feel powerless to help someone you love. It is even harder to accept that that there is no scientific plan, no experimental therapy, and indeed no answer for a disease with such a cruel prognosis. My father dedicated his life to the pursuit of knowledge, becoming a leader and a mentor to many in his field. Then, he contracted this rare, untreatable, and ultimately fatal condition. Anger began to set in. How could science fail him like this?