Contributed by: Tim Molloy and Family
Established in 2019
Jeremy Flowers was just 49 years old when CJD took his life—only 43 days after his diagnosis.
What began as small memory lapses and balance issues quickly became something much more serious. Like many families facing rare diseases, Jeremy’s wife Jenny struggled to find answers.
Read Jenny’s story and learn how the CJD Foundation supported the Flowers Family during their most difficult days.
Chair and Professor, Department of Medical Microbiology and Immunology, Creighton University School of Medicine
Omaha, NE
Contributed by: The Sandler Family
This grant was established in 2026.
Contributed by: The Roberts Family
This grant was established in 2026.
Contributed by: The Raskin Family
This grant was established in 2026.
Contributed by: The Lewine Family
This grant was established in 2026.
Contributed by: Kristal Enter
This grant was established in 2026.
Contributed by: The Dubin Family
This grant was established in 2026.
Contributed by: The Berg Family
This grant was established in 2026.
Grant Title: Investigating the role of BLOC-1 complex in prion disease
Location: Institute for the Science of the Aging Brain (ISAB), St. Gallen, Switzerland
Grant Year: 2026
Grant Title: DNA Extraction for Global Genome-Wide Association Studies (GWAS) in Creutzfeldt-Jakob Disease
Location: MRC Prion Unit and National Prion Clinic, University College London (UCL) Institute of Prion Diseases
Grant Year: 2026
Grant Title: The structural basis of prion-induced synaptotoxicity
Location: Imperial College London (ICL)
Grant Year: 2026
Grant Title: New strains, new risks: evaluating the host range and zoonotic potential of CWD prion strains
Location: The University of Texas Health Science Center at Houston
Grant Year: 2026
Grant Title: Characterizing Early Synaptic Dysfunction in Human Prion Disease Using a Human iPSC-Derived Neuronal Model
Location: University of California, San Diego
Grant Year: 2026
Grant Title: Haematopoietic stem cell gene therapy as a novel therapeutic for CNS prion disease
Location: The Roslin Institute & Royal (Dick) School of Veterinary Studies, University of Edinburgh
Grant Year: 2026
Grant Title: Development of RNA Splicing Modulators for the Treatment of Creutzfeldt-Jakob Disease (CJD)
Location: University of Chicago
Grant Year: 2026
Grant Title: Hypomorphic low PrP expressing mice as models for prion replication and native function
Location: Broad Institute of MIT and Harvard
Grant Year: 2026
Grant Title: Using a Kuru-Protective PrP Mutation as a Novel Prion Therapy
Location: Edgar Minas Housepian Professor & Chair, Department of Biochemistry & Cell Biology, Boston University/Chobanian & Avedisian School of Medicine
Grant Year: 2026
Grant Title: Early vs late intervention: PrP-lowering therapy stage-dependent outcomes in sCJD and GSS mouse models
Location: Center for Cooperative Research in Biosciences (CIC bioGUNE), Basque Research and Technology Alliance (BRTA), Derio, Spain
Grant Year: 2026
Franklin, MA