Home - CJD Foundation

We support families affected by prion disease.

Learn more about Strides for CJD
October 7, 8, 14, and 15 2023

Creutzfeldt-Jakob Disease (CJD) is a rare, fatal brain disorder within a group of illnesses called prion diseases.

In the United States there are nearly 500 new CJD cases per year.

The incidence of CJD cases worldwide is one to two cases, per million individuals, per year.

We provide a HelpLine - 7-days a week - to connect families with resources they need
We offer referrals, support groups, and webinars
We help educate families, caregivers, medical professionals, and funeral professionals
We hold an Annual Family Conference that brings together affected families and prion disease experts
We collaborate with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
We offer a Research Grant Program with international awardees selected by our Scientific Advisory Committee

The 2023 CJD Foundation Family Conference in Washington DC will be held July 14-16.

Show your support for those affected by Creutzfeldt-Jakob Disease and other prion diseases.