Skip to content
TOLL-FREE HELPLINE: 1-800-659-1991
CONTACT US
Search
Search
Close this search box.
Donate
About Prion Disease
Types of Prion Disease
Diagnosis
CJD Foundation Literature
Glossary
FAQs
For Families
Caregiver Support
End of Life Planning
Expert Interviews
Conference Recordings
Drug Development
Family Memorial Research Grants
Research Grant Recipients
Family Stories
For Professionals
Researchers
Funeral Professionals
Hospice Professionals
Infection Control
Medical Education
Genetic Counselors
About Us
Our Mission
Leadership
Events
News
Financial Information
Store
Contact
Take Action
Advocacy
Strides for CJD
Donate
Fundraise
Prion Registry
Patient Questionnaire
Menu
About Prion Disease
Types of Prion Disease
Diagnosis
CJD Foundation Literature
Glossary
FAQs
For Families
Caregiver Support
End of Life Planning
Expert Interviews
Conference Recordings
Drug Development
Family Memorial Research Grants
Research Grant Recipients
Family Stories
For Professionals
Researchers
Funeral Professionals
Hospice Professionals
Infection Control
Medical Education
Genetic Counselors
About Us
Our Mission
Leadership
Events
News
Financial Information
Store
Contact
Take Action
Advocacy
Strides for CJD
Donate
Fundraise
Prion Registry
Patient Questionnaire
We support families affected by prion disease.
Get Help Now
View Upcoming Events
Learn More About Prion Disease
Get Help Now
View Upcoming Events
Learn More About Prion Disease
Mark your calendar!
Learn more about Strides for CJD
October 7, 8, 14, and 15 2023
learn more
Creutzfeldt-Jakob Disease (CJD) is a rare, fatal brain disorder within a group of illnesses called prion diseases.
In the United States there are nearly 500 new CJD cases per year.
The incidence of CJD cases worldwide is one to two cases, per million individuals, per year.
How we’re making a difference.
We provide a HelpLine - 7-days a week - to connect families with resources they need
We offer referrals, support groups, and webinars
We help educate families, caregivers, medical professionals, and funeral professionals
We hold an Annual Family Conference that brings together affected families and prion disease experts
We collaborate with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
We offer a Research Grant Program with international awardees selected by our Scientific Advisory Committee
We earned a 4-Star Rating from Charity Navigator!
Join us!
The 2023 CJD Foundation Family Conference in Washington DC will be held July 14-16.
register
Visit our store!
Show your support for those affected by Creutzfeldt-Jakob Disease and other prion diseases.
Shop