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The NPDPSC compiles statistics which, we hope, will provide useful scientific and demographic information. Once you complete the questionnaire, we will ask you to sign a permission form. If you have previously completed a questionnaire and are willing to allow us to share the information with the NPDPSC, please email your permission to help@cjdfoundation.org.

Please note that the completion of a questionnaire is completely voluntary.

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© 2025 The CJD Foundation Inc. (CJDF) is a registered 501(c)(3) non-profit organization.

This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.