Sporadic Prion Disease Q&A Session with Dr. Appleby

Tuesday, December 5, 2023 – 7:00pm If you would like to learn more about sporadic prion disease, please join us for a Q&A session led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center. To register, please contact our Helpline at 800-659-1991 or email us at help@cjdfoundation.org.

Genetic Prion Disease Virtual Support Group – EASTERN TIME

Wednesday, December 13, 2023 – 7:00pm FOR GENETIC FAMILIES ONLY If you are a family affected by Genetic Prion Disease, please join us for a Peer-Led Virtual Support Group. This group is designed to provide support and the opportunity for open dialogue in a secure forum. To register, please contact our Helpline at 800-659-1991 or email help@cjdfoundation.org.

Rare Disease Day

Wednesday, February 28, 2024 – 9:00am Those of us affected by CJD remember and miss our loved ones every day. But Rare Disease Day, February 28, reminds us to join with others around the world to honor the memory of our loved ones, and to advocate for global awareness and education.  You have the knowledge to educate others. […]