Alex’s Family Story
Alex wrote the script and directed the film Farewell Fire, a story about life, death, and the perspective that nature gives us on how to live, inspired by his father who passed away from Creutzfeldt-Jakob Disease in 2020.
Lamari Family’s Story
Frank S. Lamari, Jr. lost his life to CJD on May 14, 2021. The Lamari Family began hosting Strides for CJD in Johnsonburg, PA in October 2021 and was the 5th highest fundraising team nationally in 2022 and the 2nd highest fundraising team nationally in 2023.
Trevor’s Story
Trevor is a producer and editor. He is known for his production of the television series, “Wahlburgers” and “Alaska: The Last Frontier,” but we think his greatest work is the 2014 film, “One in a Million: A CJD Documentary.”
Rhonda’s Story
Discover how Rhonda celebrates the life of her husband, Jon, by hosting an annual fundraising event that supports scientific research grants.
Lavonne’s Story
Harvey L. Hall, Bakersfield, California’s 25th Mayor, and an EMS pioneer, as the founder of Hall Ambulance Service, lost his life to CJD on May 19, 2018, just two weeks and seven hours after diagnosis.He was one of the longest-serving mayors in Bakersfield’s history, serving from 2000-2016.
Kathy’s Story
Find out more about Kathy and who inspires her to host this annual fundraiser that supports CJD research.
Jeanne’s Story
When CJD took the life of Jeanne’s husband, Michael, she became a woman on a mission.
Janine’s Story
Take some great advice from Janine, whose fundraisers — held in honor of her husband’s memory — have proven to be very successful.
Hunter Family’s Story
The past several years, Byron Jones, a Dallas Cowboys Cornerback, has chosen to raise awareness of and support The CJD Foundation through the NFL’s My Cause My Cleats Program. The players wear their designed cleats in the games following Giving Tuesday. Their cleats are then auctioned off, with proceeds benefiting the chosen philanthropic organization.
Golden Family’s Story
Helen Golden and her two daughters, Shannon and Michelle, began hosting the Pittsburgh area Strides for CJD event in 2018 in memory of their beloved husband and father Pat Golden.
