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Charlotte’s Story

Charlotte and her family have hosted several fundraisers in Massachusetts in memory of their beloved Amale, including a pop-up shopping benefit, a fundraiser dinner and the annual Hope for CJD charity 5K walk.

"Once we lost my mom (to CJD), we did some research, and we were stunned. After realizing how critical fundraising is for CJD, we knew we had to take part."

— Charlotte

  • Charlotte's story
  • Family members gather for the Hope for CJD Walk in 2018

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© 2024 The CJD Foundation Inc. (CJDF) is a registered 501(c)(3) non-profit organization.

This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.