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- Supporting Families Affected by Prion Disease
Each year the Family Conference gathers researchers, medical professionals and families in person. The weekend includes interaction the CJD community, informative talks, interactive roundtables, peer support groups, advocacy training, and more.
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone — anywhere — can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.
This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.
