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Resolution Designating November 12 Creutzfeldt-Jakob Disease (CJD) Awareness Day Introduced in Congress

21 Strides for CJD events took place across the country this year and ~$600,000 was fundraised.

Keynote Speakers Graphic-Prusiner
Keynote Speakers Graphic-Goedert
Keynote Speakers Graphic-Collinge

Mechanisms of Neurodegeneration in Human Prion Diseases and Their Intersection with AD/ADRD

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Learn More About Prion Disease

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Clinical Trial Updates

8-15-2024 Ionis Pharmaceuticals Community Statement
Information on ION717 Clinical Trial
4-5-2024 Ionis Pharmaceuticals Community Statement
Additional Information about Drug Development and Clinical Trials
Creutzfeldt-Jakob Disease (CJD) is a rare, fatal brain disorder within a group of illnesses called prion diseases.
In the United States there are nearly 500 new CJD cases per year.
The incidence of CJD cases worldwide is one to two cases, per million individuals, per year.

How we’re making a difference.

  • We provide a HelpLine - 7-days a week - to connect families with resources they need
  • We offer referrals, support groups, and webinars
  • We help educate families, caregivers, medical professionals, and funeral professionals
  • We hold an Annual Family Conference that brings together affected families and prion disease experts
  • We collaborate with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
  • We offer a Research Grant Program with international awardees selected by our Scientific Advisory Committee
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The 2025 CJD Foundation Family Conference will be held July 11-13 in Chicago, IL.
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© 2024 The CJD Foundation Inc. (CJDF) is a registered 501(c)(3) non-profit organization.

This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.