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Your voice is crucial in raising awareness of CJD and what needs to be done to make a difference! The CJD Foundation will set up meetings with your legislative representatives, and provide training on how to be an advocate, and connect you with an experienced advocate for your Capitol Hill visits.
Each year the Family Conference gathers researchers, medical professionals and families in person. The weekend includes interaction the CJD community, informative talks, interactive roundtables, peer support groups, advocacy training, and more.
This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.
