Current Events

Wednesday, October 24, 2018 - 8:00pm

You're invited to join this telephone support group for families affected by Gerstmann-Sträussler-Scheinker Disease, including caregivers, family members, and those who are mutation positive or at risk. The call begins at 8 p.m. Eastern/5 p.m. Pacific.
To register, email help@CJDFoundation.org.

Tuesday, November 6, 2018 - 7:00pm

Join us for this teleconference support group with Professor Robert G. Will, MD, FRCP(E), Department of Clinical Neurosciences, Western General Hospital, Edinburgh, UK, and 2018 CJD Foundation Family Conference Keynote Speaker.

Professor Will will discuss "Why Do People Get CJD?"

This group is open to all families affected by prion disease and is designed to provide support, education and the opportunity for open dialogue in a secure forum.

To register and receive dial-in instructions and a participant code, email help@cjdfoundation.org or call 1-800-659-1991.

Monday, November 12, 2018 - 9:00am

Let's renew our determination, not only to honor our loved ones, but also to raise awareness.

Take a moment to educate others.
​Post on social media and educate friends and neighbors.
Proudly wear purple to show your support!

YOU have the knowledge to bring awareness to others. Together we can make a difference.

Coming in 2018

Strides for CJD walk/run event
Saturday, October 6, 2018 - 9:00am

Join our 4th annual walk/run event, October 6 to 13, 2018:

  • Atlanta, GA
  • Bakersfield, CA
  • Beverly Hills, CA
  • Boston, MA
  • Charleston, WV
  • Chicago, IL
  • Cleveland, OH
  • Denver, CO
  • Joppa, MD
  • Minneapolis, MN
  • Morris Plains, NJ
  • Pittsburgh, PA
  • Scottsdale, AZ
  • Seattle, WA
  • Wausau, WI

Or register to walk as an individual/small group

Through Strides for CJD, anyone — anywhere — can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.

REGISTER ONLINE AT WWW.STRIDES4CJD.COM

Registration fee
Adults — $30 before Sept. 14, $35 after Sept. 14
Children 12 and under — $20 before Sept. 14, $25 after Sept. 14

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