Current Events

Monday, September 17, 2018 - 6:00pm

This group meets one Monday each month in Manhattan.
Upcoming meetings: Oct. 15, Nov. 12 and Dec. 10!

Advance registration is required; email Help@cjdfoundation.org.

Saturday, September 22, 2018 - 4:00pm

10th Annual CJD Benefit Concert in Memory of Robert (Bob) Vitanza
Where: The Warehouse at FTC, 70 Sanford Street, Fairfield, CT 06824
When: Saturday, September 22, 2018 @ 4-11PM
Admission: $20 ($10 for kids 12 & under) in advance; $25 ($10 for kids 12 & under) at the door.

Saturday, October 6, 2018 - 9:00am

Our 4th annual Strides for CJD event is scheduled for October 6, 2018 (October 7 or 13 in some locations). Strides for CJD is a series of walk/run events in communities across the U.S. Families and supporters of those affected by prion disease gather to raise awareness, support each other, and raise funds for vital programs.

COMING SOON: Watch this website for a list of Strides for CJD 2018 locations.

If you don't live near those locations, you can register to run/walk in your hometown as an "Individual or Small Group."

For more information, visit https://cjdfoundation.org/strides

Coming in 2018

CJD Foundation Family Conference in Washington, D.C.
Friday, July 13, 2018 - 9:00am

Please join us for the 2018 CJD Foundation Family Conference, July 13 to 15, in Washington, D.C. (Advocacy Day, July 16)

The conference fee is $215 per person. Online registration is available here: https://cjdfoundation.org/conference


Hotel reservations must be made separately with the Washington Court Hotel, 525 New Jersey Ave. NW, by calling 202-628-2100. To reserve a room in our block, call the hotel and mention CJD Foundation.


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The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.

In 2002 we hosted our first CJD Foundation Family Conference in Washington, D.C., with the hope that families and researchers could learn from each other if we brought them together. We found that the conference provided a unique opportunity for attendees to begin or continue their healing process. It was also the first time many of the scientists had ever met a family member touched by the disease they were spending their lives researching.

The CJD Foundation Family Conference has grown over the years, attracting many more North American families, as well as families from other countries. We’ve added a Family Workshop Friday afternoon to offer an opportunity for families affected by a genetic prion disease to meet and discuss issues of concern.

Saturday is devoted to learning about the latest scientific discoveries. With the help of our Medical Director and Scientific Director, we invite scientists conducting new and promising prion disease research to speak to our families about their work. On Sunday, we hear about the work of the CJD Foundation, including an overview of the information collected through our Questionnaires.

Monday is devoted to visiting your state representatives on Capitol Hill. We set up the appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to tell your story to your elected representatives and to ask for financial support for prion disease research and for the strengthening of food safety policies.

To learn more about the Family Conference, call 1-800-659-1991 or email us at help@cjdfoundation.org.

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