Upcoming Events

Monday, June 1, 2020 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Wednesday, June 3, 2020 - 7:00pm

This group is full. To join the waiting list for the next Bereavement series, please contact us at Help@CJDFoundation.org or 1-800-659-1991.

Tuesday, June 9, 2020 - 7:00pm

Families who receive a prion disease diagnosis often have many questions about the diagnosis and their next steps. They must quickly determine how to care for the patient, and where.

Join this virtual teleconference on Tuesday, June 9 at 7 p.m. ET with Brian Appleby, MD, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center, and Lauren Somple, MSW, LISW-S, Clinical Social Worker, University Hospitals Foley Elder Health Center of Cleveland, to hear more about:

  • Understanding the CJD diagnosis
  • Developing a care plan
  • What hospice can provide to support the patient and family
  • How to apply for SSDI
  • What else to consider after receiving a diagnosis

To register and receive dial-in instructions and a participant code, email help@cjdfoundation.org or call 1-800-659-1991.

Featured Event

Telephone Support Group for Current Caregivers
Tuesday, June 16, 2020 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past. Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group. Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991. We will share information and referrals with you, then qualify and register you for the caregivers group.

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