Current Events

Tuesday, November 28, 2017 - 9:00am

We at the CJD Foundation are thankful for all who support our shared cause, and we hope you will keep us in mind on Giving Tuesday. Giving Tuesday is a movement that inspires people to take collaborative action to improve their local communities, give back in better, smarter ways to the charities and causes they celebrate and help create a better world.  To join the celebration of giving, please click here to Donate to support others and fight the battle against CJD.

Monday, December 4, 2017 - 6:00pm

This group meets one Monday each month in Manhattan. This is the last meeting in 2017.
2018 dates: January 8, February 12, March 5, April 9, May 7 and June 4.

For more information, email Help@cjdfoundation.org.

Tuesday, December 5, 2017 - 7:00pm

These evening conference calls allow families to ask questions of a prion disease expert, learn from the experience of other families, and lend support to one another. This call will be led by Dr. Joel Watts, of the University of Toronto, who will discuss his work and developments in the prion field. To register and receive dial-in instructions and a participant code, call 1‑800‑659-1991 or email leslie@cjdfoundation.org.

Coming in 2018

CJD Foundation Family Conference in Washington, D.C.
Friday, July 13, 2018 - 9:00am

Please join us for the 2018 CJD Foundation Family Conference, July 13 to 15, in Washington, D.C.

The CJD Foundation's Family Conference, held annually in Washington, D.C., brings together prion disease experts and families affected by prion disease.

In 2002 we hosted our first CJD Foundation Family Conference in Washington, D.C., with the hope that families and researchers could learn from each other if we brought them together. We found that the conference provided a unique opportunity for attendees to begin or continue their healing process. It was also the first time many of the scientists had ever met a family member touched by the disease they were spending their lives researching.

The CJD Foundation Family Conference has grown over the years, attracting many more North American families, as well as families from other countries. We’ve added a Family Workshop Friday afternoon to offer an opportunity for families affected by a genetic prion disease to meet and discuss issues of concern.

Saturday is devoted to learning about the latest scientific discoveries. With the help of our Medical Director and Scientific Director, we invite scientists conducting new and promising prion disease research to speak to our families about their work. On Sunday, we hear about the work of the CJD Foundation, including an overview of the information collected through our Questionnaires.

Monday is devoted to visiting your state representatives on Capitol Hill. We set up the appointments for those families wishing to participate and provide advocacy training on Sunday afternoon. This is a unique opportunity to tell your story to your elected representatives and to ask for financial support for prion disease research and for the strengthening of food safety policies.

To learn more about the Family Conference, call 1-800-659-1991 or email us at help@cjdfoundation.org.

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