Upcoming Events

Tuesday, September 22, 2020 - 7:00pm

Join us virtually on Tuesday, September 22 at 7 pm Eastern to hear from CJD Foundation Research Grant Recipients about their research.

Tuesday, September 29, 2020 - 7:00pm

Join us virtually on Tuesday, September 29 at 7 pm Eastern to hear from Anne Smith, Executive Director, Clinical Development at Ionis Pharmaceuticals.

Saturday, October 3, 2020 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.

This year, Strides for CJD will be a VIRTUAL event nationwide. While we’re not able to gather in person, we will unite in spirit to raise much needed awareness and funds for CJD and other prion diseases. 

Featured Event

Telephone Support Group for Current Caregivers
Tuesday, September 15, 2020 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past. Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group. Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991. We will share information and referrals with you, then qualify and register you for the caregivers group.

Social Media

Show Your Support


Visit our store and show your support for the CJD Foundation and those affected by prion diseases.

> VISIT STORE

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