Upcoming Events

Tuesday, October 26, 2021 - 7:00pm

If you are a family affected by Sporadic Prion Disease, please join us for a Support Group by phone, led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center.

This group is designed to provide support, education and the opportunity for open dialogue in a secure forum.

To register, please contact our Helpline at 800-659-1991. 

Monday, November 1, 2021 - 6:00pm

This group typically meets one Monday each month in Manhattan, but is currently meeting by phone, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, November 9, 2021 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Featured Event

2021 Strides for CJD
Saturday, October 2, 2021 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.

This year, Strides for CJD will be the weekends of October 2 and October 9. 

For more information, visit www.strides4cjd.com.

Social Media

Show Your Support


Visit our store and show your support for the CJD Foundation and those affected by prion diseases.

> VISIT STORE

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