Current Events

Thursday, February 28, 2019 - 9:00am

Today is Rare Disease Day!

Those of us affected by CJD remember and miss our loved ones every day. But today, Rare Disease Day, reminds us to join with others around the world to honor the memory of our loved ones, and to advocate for global awareness and education. 

Please share this message with your friends and families. You have the knowledge to educate others. Together we can raise awareness of prion disease and make a difference!

FIVE ways to commemorate Rare Disease Day:

Monday, March 4, 2019 - 6:00pm

This group meets one Monday each month in Manhattan, from 6 to 8 p.m.
Upcoming meetings: April 8, May 13, June 3, September 9, October 7, November 4 and December 2.
Advance registration is required; email Help@CJDFoundation.org.

Thursday, March 14, 2019 - 5:00pm

Family workshops are open to all families affected by a prion disease and are designed to provide support, education, and the opportunity for open dialogue in a secure forum. Please join us! Register by Monday, March 11, to help@cjdfoundation.org or call us at 1-800-659-1991.

Coming in 2019

2019 CJD Foundation Family Conference
Friday, July 12, 2019 - 9:00am


Please join us for the 2019 CJD Foundation Family Conference, July 12 to 14 (Advocacy Day, July 15), in Washington, D.C.

To learn more about the CJD Foundation Family Conference, visit https://cjdfoundation.org/cjdf-family-conference-0.

To view presentations by our Research Grant Recipients at previous years' Family Conferences, visit https://cjdfoundation.org/grant-recipients.

For more information about this annual event and how you can become a Conference Sponsor, call 1-800-659-1991 or email us at help@cjdfoundation.org.

 

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