Current Events

Wednesday, November 14, 2018 - 4:00pm

The West Coast Family Forum runs from 4 p.m. to 8 p.m.

San Francisco Airport Marriott Waterfront, 1800 Old Bayshore Highway, Burlingame, CA 94010
650-692-9100


Featuring a Family Workshop and Q&A discussion, with:

• Debbie Yobs, President, CJD Foundation

• Michael Geschwind, MD, PhD, Professor of Neurology, UCSF Memory & Aging Center

• Zuzana Krejciova, PhD, Assistant Professional Researcher, UCSF Institute for Neurodegenerative Diseases, and Recipient of a 2016 CJD Foundation Research Grant

• Julie Moreno, PhD, Assistant Professor, Prion Research Center, Colorado State University, and Recipient of a 2015 CJD Foundation Research Grant

• Trevor Baierl, member of the CJD Foundation Board, and filmmaker of the documentary, “One in a Million”


Register TODAY! Call 1-800-659-1991 or email help@cjdfoundation.org

Sponsored in part by The Centers for Disease Control and Prevention and a bequest from the estate of Beverly Nylund Huchala.

This workshop is open to all families affected by a prion disease and is designed to provide support, education, and the opportunity for open dialogue in a secure forum.

Please Join Us! There is no charge for this forum, but registration is required.

Wednesday, November 28, 2018 - 8:00pm

You're invited to join this telephone support group for families affected by Gerstmann-Sträussler-Scheinker Disease, including caregivers, family members, and those who are mutation positive or at risk. The call begins at 8 p.m. Eastern/5 p.m. Pacific.
To register, email help@CJDFoundation.org.

Tuesday, December 4, 2018 - 7:00pm

Join us for this teleconference support group with Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center, Cleveland, Ohio.

This group is open to all families affected by prion disease and is designed to provide support, education and the opportunity for open dialogue in a secure forum.

To register and receive dial-in instructions and a participant code, email help@cjdfoundation.org or call 1-800-659-1991.

Coming in 2019

2019 CJD Foundation Family Conference
Friday, July 12, 2019 - 9:00am


Please join us for the 2019 CJD Foundation Family Conference, July 12 to 14 (Advocacy Day, July 15), in Washington, D.C.

To learn more about the CJD Foundation Family Conference, visit https://cjdfoundation.org/cjdf-family-conference-0.

To view presentations by our Research Grant Recipients at previous years' Family Conferences, visit https://cjdfoundation.org/grant-recipients.

For more information about this annual event and how you can become a Conference Sponsor, call 1-800-659-1991 or email us at help@cjdfoundation.org.

 

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