Upcoming Events

Monday, February 6, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Eastern.

Advance registration is required; email Help@CJDFoundation.org.

Wednesday, February 15, 2023 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Virtual Caregivers’ Support Group.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Tuesday, February 21, 2023 - 6:00pm

This virtual support group is for anyone in the U.S. and will meet virtually at 6 pm Pacific.

Advance registration is required; email Help@CJDFoundation.org.

Featured Event

2023 CJD Foundation Family Conference
Friday, July 14, 2023 - 9:00am

We're back and better than ever! Plan to join the CJD Community in Washington, DC from July 14-16, 2023 for the CJD Foundation Family Conference!

The CJD Foundation Family Conference offers families impacted by prion disease the opportunity to connect with one another and feel part of a community.

Over two days, you'll hear from grant recipients about their research, see how CJD Foundation programs are working for you, and learn about advocacy channels.

Learn More

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Show Your Support


Visit our store and show your support for the CJD Foundation and those affected by prion diseases.

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This is a basic Table. Adjust borders and backgrounds to match the site style.
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