Upcoming Events

Monday, February 7, 2022 - 6:00pm

This group typically meets one Monday each month in Manhattan, but is currently meeting by phone, from 6 to 8 p.m.

Advance registration is required; email Help@CJDFoundation.org.

Tuesday, February 15, 2022 - 7:00pm

If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Caregivers’ Support Group by phone.

Support Group discussion will be led by several family members who have cared for a loved one in the past.  Participants have the opportunity to share their questions and concerns and gain ideas and insights from the group.  Only CURRENT caregivers may register.

To register, please contact our Helpline at 800-659-1991.  We will share information and referrals with you, then qualify and register you for the caregivers group.

Monday, February 28, 2022 - 9:00am

Those of us affected by CJD remember and miss our loved ones every day. But Rare Disease Day, February 28, 2022, reminds us to join with others around the world to honor the memory of our loved ones, and to advocate for global awareness and education. 

You have the knowledge to educate others. Together we can raise awareness of prion disease and make a difference!

Here are Six Ways to Raise Awareness of Prion Disease on February 28:
  • Write to your legislator to ask that Congress increase funding for CJD surveillance and research using our letter template.
  • Educate your friends, physicians, and community about CJD with our CJD Fact Sheet.
  • Remember those affected by visiting the CJD Memory Quilt.
  • Wear purple to show your support!
  • Add the #CureCJD Frame to your Facebook photo.
  • Share your story on social media using hashtags: #CureCJD #CJDFoundation #RareDiseaseDay.

Featured Event

2022 Strides for CJD
Saturday, October 1, 2022 - 9:00am

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.

Save the date for the 2022 Strides for CJD.  

For more information, visit www.strides4cjd.com.

Social Media

Show Your Support


Visit our store and show your support for the CJD Foundation and those affected by prion diseases.

> VISIT STORE

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