Follow the journey of Amanda and her husband, Bradley, as they fight to have children free of the gene that causes Gerstmann-Straussler-Scheinker disease, a prion disease that has “stalked her family for generations.”
Quotes from Amanda's July 2016 presentation at the CJD Foundation Family Conference:
"At the age of 26, I was handed a death sentence. I was instantly faced with making decisions about my life I never imagined I would have to make, let alone at such a young age."
"Doing (In-Vitro Fertilization with Pre-Implantation Genetic Diagnosis) gave me a purpose. It gave me back some of that sense of power that I lost because I was actually doing something to beat GSS at its own game."
"I find comfort in the fact that, as far as my family is concerned, this monster of a disease ends with me."