Lamari Family’s Story
Frank S. Lamari, Jr. lost his life to CJD on May 14, 2021. The Lamari Family began hosting Strides for CJD in Johnsonburg, PA in October 2021 and was the 5th highest fundraising team nationally in 2022 and the 2nd highest fundraising team nationally in 2023.
Gary D. Turner
May 18, 1954 – August 29, 2022
Larry Layton
March 31, 1944 – July 20, 2024
Irene Frances Petris
September 11, 1962 – June 25, 2024
Rodrigo Morales, PhD
Grant Title:
Development of a high throughput system for screening anti-prion molecules
Location:
University of Texas, Houston, TX
Grant Year: 2022
Joyce Mikos Manske
August 22, 1954 – January 25, 2024
Qingzhong Kong, PhD
Grant Title:
Development of ADAM8-based Gene Therapy for CJD
Location:
NPDPSC, Case Western Reserve University
Grant Year: 2024
Matthias Schmitz, PhD
Grant Title:
Validation of a non-invasive diagnostic test for prion diseases using tear fluid
Location:
Dementia Research Unit, Dept. of Neurology in Göttingen, National Reference Center for TSE and German Center for Neuro-degenerative diseases, Germany
Grant Year: 2024
1-26-24: Clinical Trial Announcement
1-26-24 Clinical Trial Announcement: Multiple Sites Now Open In and Outside the U.S. To learn about additional sites that have opened: Information on ION717 Clinical Trial 10-4-23 Community Statement from Ionis Pharmaceuticals 12-21-23 Clinical Trial Announcement from Ionis Pharmaceuticals
Gerold Schmitt-Ulms, PhD
Grant Title:
Bridging the pre-clinical gap for a small brain-penetrant molecule that reduces PrPC levels
Location:
Tanz Centre for Research in Neurodegenerative Diseases, University of Toronto
Grant Year: 2024