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Trevor’s Story

Trevor is a producer and editor. He is known for his production of the television series, “Wahlburgers” and “Alaska: The Last Frontier,” but we think his greatest work is the 2014 film, “One in a Million: A CJD Documentary.”

Rhonda’s Story

Discover how Rhonda celebrates the life of her husband, Jon, by hosting an annual fundraising event that supports scientific research grants.

Lavonne’s Story

Harvey L. Hall, Bakersfield, California’s 25th Mayor, and an EMS pioneer, as the founder of Hall Ambulance Service, lost his life to CJD on May 19, 2018, just two weeks and seven hours after diagnosis.He was one of the longest-serving mayors in Bakersfield’s history, serving from 2000-2016.

Kathy’s Story

Find out more about Kathy and who inspires her to host this annual fundraiser that supports CJD research.

Jeanne’s Story

When CJD took the life of Jeanne’s husband, Michael, she became a woman on a mission.

Janine’s Story

Take some great advice from Janine, whose fundraisers — held in honor of her husband’s memory — have proven to be very successful.

Hunter Family Story

The past several years, Byron Jones, a Dallas Cowboys Cornerback, has chosen to raise awareness of and support The CJD Foundation through the NFL’s My Cause My Cleats Program. The players wear their designed cleats in the games following Giving Tuesday. Their cleats are then auctioned off, with proceeds benefiting the chosen philanthropic organization.

Golden Family Story

Helen Golden and her two daughters, Shannon and Michelle, began hosting the Pittsburgh area Strides for CJD event in 2018 in memory of their beloved husband and father Pat Golden.

Ed’s Story

Gain first-hand knowledge about event planning from Ed who, along with his family and friends, grew his wife’s memorial fundraiser from a small walk to a multi-state golf outing.

Charlotte’s Story

Charlotte and her family have hosted several fundraisers in Massachusetts in memory of their beloved Amale, including a pop-up shopping benefit, a fundraiser dinner and the annual Hope for CJD charity 5K walk.