CJD Foundation Literature - CJD Foundation

CJD Foundation Resources

These fact sheets provide the most up-to-date information about CJD and our organization’s mission.

If you have any questions, feel free to contact us at 1-800-659-1991.

CJD Fact Sheet

This fact sheet provides information about CJD for the layperson. Questions answered here include: What is CJD? What are the Public Heath Concerns? What is Chronic Wasting Disease?

Download CJD Fact Sheet

Who We Are

Included in Who We Are sheet is a description of the CJD Foundation, its mission, and its services. There is a basic explanation of CJD and diagnostic tests to provide a broader understanding.

Download Who We Are

Caregiving Ideas

This sheet provides information for families who receive a prion diagnosis on what should be considered to provide care for their loved one. Topics include: developing a care plan, expecting frequent changes, creating a soothing environment, offering support for activities of daily living (ADLs), communicating with physicians, and more.

Download Caregiving Ideas

How to Help a Friend Who is Coping with CJD

This pamphlet provides suggestions for friends of a CJD patient or family on how they can help out and be supportive during a difficult time.

Download How to Help a Friend Who is Coping with CJD

Suggestions for Patient Care

This pamphlet gives family members or care providers helpful hints on how to deal with specific symptoms of CJD.

Download Suggestions for Patient Care

Suggestions for Families

Coping with a loved one's illness can be devastating. This pamphlet offers a few simple reminders for the family members coping with the diagnosis of CJD and its ramifications.

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Autopsy Information

This pamphlet offers basic information about why an autopsy is important and dispels a few common myths. It also gives useful information to the families about obtaining an autopsy.

Download Autopsy Information

Coping With Loss

This pamphlet offers basic insights into what a person commonly experiences in the grief process. Common feelings, physical symptoms of grief and tip son how to cope with this experience are discussed.

Download Coping with Loss