These fact sheets provide the most up-to-date information about CJD and our organization's mission.
If you have any questions, feel free to contact us at 1-800-659-1991.
CJD Fact Sheet
This fact sheet provides information about CJD for the lay person. Questions answered here include: What is CJD? What are the Public Health Concerns? and What is Chronic Wasting Disease?
Who We Are
Included in this fact sheet is a description of the CJD Foundation, its mission and services. There is a basic explanation of CJD and diagnostic tests to provide a broader understanding.
Caregiving Ideas
This sheet provides information for families who receive a prion diagnosis on what should be considered to provide care for their loved one. Topics include: developing a care plan, expecting frequent changes, creating a soothing environment, offering support for activities of daily living (ADLs), communicating with physicians, and more.
How to Help a Friend Who is Coping with CJD
This pamphlet provides suggestions for friends of a CJD patient or family on how they can help out and be supportive during a difficult time.
Suggestions for Patient Care
This pamphlet gives family members or care providers helpful hints on how to deal with specific symptoms of CJD.
Suggestions for Families
Coping with a loved one's illness can be devastating. This pamphlet offers a few simple reminders for the family members coping with the diagnosis of CJD and its ramifications.
Autopsy Information
This pamphlet offers basic information about why an autopsy is important and dispels a few common myths. It also gives useful information to the families about obtaining an autopsy.
Coping With Loss
This pamphlet offers basic insights into what a person commonly experiences in the grief process. Common feelings, physical symptoms of grief and tip son how to cope with this experience are discussed.
CJD Foundation Literature