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CJD Foundation Literature

These fact sheets provide the most up-to-date information about CJD and our organization’s mission.

If you have any questions, feel free to contact us at 1-800-659-1991.

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  • CJD Fact Sheet

    This fact sheet provides information about CJD for the layperson. Questions answered here include: What is CJD? What are the Public Health Concerns? and What is Chronic Wasting Disease?

    Download
  • Who We Are

    Included in this fact sheet is a description of the CJD Foundation, its mission, and its services. There is a basic explanation of CJD and diagnostic tests to provide a broader understanding.

    Download
  • Caregiving Ideas
    This sheet provides information for families who receive a prion diagnosis on what should be considered to provide care for their loved one. Topics include: developing a care plan, expecting frequent changes, creating a soothing environment, offering support for activities of daily living (ADLs), communicating with physicians, and more.
    Download
  • How to Help a Friend Who is Coping with CJD
    This pamphlet provides suggestions for friends of a CJD patient or family on how they can help out and be supportive during a difficult time.
    Download
  • Suggestions for Patient Care
    This pamphlet gives family members or care providers helpful hints on how to deal with specific symptoms of CJD.
    Download
  • Suggestions for Families
    Coping with a loved one's illness can be devastating. This pamphlet offers a few simple reminders for the family members coping with the diagnosis of CJD and its ramifications.
    Download
  • Autopsy Information
    This pamphlet offers basic information about why an autopsy is important and dispels a few common myths. It also gives useful information to the families about obtaining an autopsy.
    Download
  • Coping With Loss
    This pamphlet offers basic insights into what a person commonly experiences in the grief process. Common feelings, physical symptoms of grief and tip son how to cope with this experience are discussed.
    Download
  • CJD Fact Sheet

    This fact sheet provides information about CJD for the layperson. Questions answered here include: What is CJD? What are the Public Health Concerns? and What is Chronic Wasting Disease?

    Download
  • Who We Are

    Included in this fact sheet is a description of the CJD Foundation, its mission, and its services. There is a basic explanation of CJD and diagnostic tests to provide a broader understanding.

    Download
  • Caregiving Ideas
    This sheet provides information for families who receive a prion diagnosis on what should be considered to provide care for their loved one. Topics include: developing a care plan, expecting frequent changes, creating a soothing environment, offering support for activities of daily living (ADLs), communicating with physicians, and more.
    Download
  • How to Help a Friend Who is Coping with CJD
    This pamphlet provides suggestions for friends of a CJD patient or family on how they can help out and be supportive during a difficult time.
    Download
  • Suggestions for Patient Care
    This pamphlet gives family members or care providers helpful hints on how to deal with specific symptoms of CJD.
    Download
  • Suggestions for Families
    Coping with a loved one's illness can be devastating. This pamphlet offers a few simple reminders for the family members coping with the diagnosis of CJD and its ramifications.
    Download
  • Autopsy Information
    This pamphlet offers basic information about why an autopsy is important and dispels a few common myths. It also gives useful information to the families about obtaining an autopsy.
    Download
  • Coping With Loss
    This pamphlet offers basic insights into what a person commonly experiences in the grief process. Common feelings, physical symptoms of grief and tip son how to cope with this experience are discussed.
    Download
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© 2025 The CJD Foundation Inc. (CJDF) is a registered 501(c)(3) non-profit organization.

This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.