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“The living room TV stared back at us. Blank. The news was usually on in the morning at this hour if someone was home. Dad was never here at this time on a weekday. But everything changed when he started showing symptoms of aphasia – yes, like Bruce Willis – that turned out to be the one-in-a-million, always-fatal neurodegenerative condition known as Creutzfeldt-Jakob Disease (CJD).”
“Spring is a time of rebirth, of resurgence, of flowers in bloom and pollen and sneezes. A time of change toward something brighter, warmer. This is the season we spring forward. But last spring, I fell back. I lurched, I crumbled, I screamed and no sound left my voice. I simply sat on the edge of a cliff, waiting, waiting, waiting for the inevitable event to happen, the moment my dad would stop suffering, and I could breathe again.”
This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.
