The Genetic Information Nondiscrimination Act (GINA) is a federal law that prohibits health insurers and employers from discriminating based on genetic information. These laws make it illegal for health insurance companies to deny you coverage or change your premiums based on your genetic test information, and a positive test result cannot be considered a pre existing condition. There are currently no federal laws that prohibit life, long term care, or disability insurance companies from discriminating based on genetic information. For additional information and a list of some rare exceptions to the GINA protections, you can visit the online resource http://www.ginahelp.org. Some states may also have additional protections in place.
For information about the genetic form of Creutzfeldt-Jakob Disease, click here.