Close this search box.

Joyce’s Story

Joyce wrote a “Tiny Love Story” for the New York Times titled “Our Goodbye” about her husband.

In November 2013, my husband Jon ran the New York City Marathon. In February 2014, he was hospitalized for a seizure. At 51, he discovered that he had Creutzfeldt-Jakob disease, a monstrous, degenerative brain disorder. Within a week, Jon lost the ability to move his limbs and speak. But on Valentine’s Day he was still able to hold my hand and form his lips into a kiss. This photo, taken by our son, Henry, captures the final page of our 28-year story, where we felt the warmth of each other’s skin, took in each other’s gaze and began our goodbye.