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Kristen’s Story

Kristen’s mother’s CJD symptoms started when she noticed that her slippers kept dropping off her feet when she was sitting at a high-top table and then slowly other minor symptoms of confusion and losing balance began her interaction with a neurologist. After six weeks, her mother passed away in her home. Kristen, who is a PhD for the Department of Psychiatry, Rutgers, Robert Wood Johnson Medical School, Piscataway, New Jersey, wrote an opinion article titled “The Promise and Peril of the Patient Portal” in JAMA Neurology an American Medical Association Journal in November 2021. Read about her diagnostic experience, observations about the patient portal, and communication tips.