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- Supporting Families Affected by Prion Disease
The NPDPSC compiles statistics which, we hope, will provide useful scientific and demographic information. Once you complete the questionnaire, we will ask you to sign a permission form. If you have previously completed a questionnaire and are willing to allow us to share the information with the NPDPSC, please email your permission to help@cjdfoundation.org.
Please note that the completion of a questionnaire is completely voluntary.
This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.
