Trevor's Story

To watch Trevor's presentation at our 2016 Family Workshop, click here or on the PLAY button above.

Click here to watch "Making a Difference: My Story and My Mission," a short film featuring Trevor Baierl, Amanda Baxley Kalinsky, and Sonia Vallabh & Eric Minikel, from the 2016 Family Conference.

Trevor is a producer and editor. He is known for his production of the television series, "Wahlburgers" and "Alaska: The Last Frontier," but we think his greatest work is the 2014 film, "One in a Million: A CJD Documentary."

"This is my personal struggle and journey to learn about the genetic disease that took my grandfather and my mother," he writes. "Creutzfeld-Jakob Disease is a 100-percent fatal, untreatable neurodegenerative disease. I now have a 50/50 chance of inheriting the gene responsible for CJD.

"My journey starts with the rapid decline of my mother and takes me across North America as I seek answers from the top doctors and researchers in this field. I share the stories of other families affected by this horrible disease and what they are doing to help find a cure. Together, we march to the Capitol and demand that the Congress provide funding for research and surveillance of the disease. It ends when I discover my results."

In Trevor's 2014 film, "One in a Million: A CJD Documentary," he interviews medical experts about Creutzfeldt-Jakob Disease, follows the downward spiral of the illness in his mother and learns whether he, too, carries the gene.