FOR GENETIC FAMILIES ONLY If you are a family affected by Genetic Prion Disease, please join
This peer-led support group is exclusively for people at risk for developing genetic prion disease.
All U.S. families affected by prion disease, past or present, are welcome to attend this
If you would like to learn more about sporadic prion disease, please join us for
If you are currently caring for a loved one with CJD/Prion Disease, please join us for a
Those of us affected by CJD remember and miss our loved ones every day. But Rare Disease
Join us for CJD Advocacy Day in Washington DC on March 4-5, 2024. Why visit
This website was made possible by a generous donation from Cookie Stivison, in memory of her husband Tom Stivison, and a grant from the Centers for Disease Control and Prevention.