Low Family’s Story
Dr. Gary K. Low lost his life to CJD on August 29, 2020.
The Low Family was the 2nd highest fundraising team nationally in 2022.
Kendall Family’s Story
Evelyn M. Kendall lost her life to CJD on August 2, 2019.
Evelyn’s family was the 2nd highest fundraising team nationally in 2020 and the top fundraising team for Strides for CJD – Arlington, TX in 2021.
Lamari Family’s Story
Frank S. Lamari, Jr. lost his life to CJD on May 14, 2021. The Lamari Family began hosting Strides for CJD in Johnsonburg, PA in October 2021 and was the 5th highest fundraising team nationally in 2022 and the 2nd highest fundraising team nationally in 2023.
Yaffa Family’s Story
Jerry Yaffa lost his life to CJD on June 21, 2005.
The Yaffa Family was the 2nd highest fundraising team nationally in 2021 and the 3rd highest fundraising team nationally in 2022 and 2023, the 2nd highest fundraising team nationally in 2024, and the top fundraising team nationally in 2025.
Gary D. Turner
May 18, 1954 – August 29, 2022
Larry Layton
March 31, 1944 – July 20, 2024
Irene Frances Petris
September 11, 1962 – June 25, 2024
Rodrigo Morales, PhD
Grant Title:
Development of a high throughput system for screening anti-prion molecules
Location:
University of Texas, Houston, TX
Grant Year: 2022
Joyce Mikos Manske
August 22, 1954 – January 25, 2024
Qingzhong Kong, PhD
Grant Title:
Development of ADAM8-based Gene Therapy for CJD
Location:
NPDPSC, Case Western Reserve University
Grant Year: 2024