CJDF Webinar: Legal and Financial Planning for Families affected by Prion Disease

Please join us for a special guest speaker, Deirdre Wheatley-Liss, Esq., on March 18th 7 PM EST – open to all CJD families/CJDF Webinar: Legal and Financial Planning for Families affected by Prion Disease. 

The event will address:

  • Preparing financially and legally for future scenarios: Guardianship, POA, Estate planning/management
  • What to prepare once your loved one is diagnosed, including SSDI applications (fast track), Health care proxy, Will and other documents
  • For those contemplating genetic testing, what steps to take first, including life insurance, long-term care insurance, genetic counseling
  • Understanding the GINA Act and Right to Restrict Disclosure of Protected Health

Deirdre Wheatley-Liss is a nationally recognized speaker and educator on estate planning and elder law.  Her presentation will be followed by a Q&A period.

To complete your registration, please email us at help@cjdfoundation.org or call our Helpline at 1-800-659-1991. 

  • Date : March 18, 2026
  • Time : 7:00 pm - 8:30 pm (America/New_York)
  • Venue : Online

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