Don’s Story

Donald Friedman shares the story of caring for his sister, Phyllis, in Still Phyllis: A Caregiver’s Memoir of Dementia and Creutzfeldt-Jakob Disease.

Collins Family’s Story

Amy Collins lost her life to CJD on December 14, 2018.

The Collins Family was the 3rd highest fundraising team nationally in 2021, the 4th highest fundraising team nationally in 2022, 2023, and 2024, and the 2nd highest fundraising team nationally in 2025.