Jeanne’s Story
When CJD took the life of Jeanne’s husband, Michael, she became a woman on a mission.
Janine’s Story
Take some great advice from Janine, whose fundraisers — held in honor of her husband’s memory — have proven to be very successful.
Hunter Family’s Story
The past several years, Byron Jones, a Dallas Cowboys Cornerback, has chosen to raise awareness of and support The CJD Foundation through the NFL’s My Cause My Cleats Program. The players wear their designed cleats in the games following Giving Tuesday. Their cleats are then auctioned off, with proceeds benefiting the chosen philanthropic organization.
Golden Family’s Story
Helen Golden and her two daughters, Shannon and Michelle, began hosting the Pittsburgh area Strides for CJD event in 2018 in memory of their beloved husband and father Pat Golden.
Ed’s Story
Gain first-hand knowledge about event planning from Ed who, along with his family and friends, grew his wife’s memorial fundraiser from a small walk to a multi-state golf outing.
Charlotte’s Story
Charlotte and her family have hosted several fundraisers in Massachusetts in memory of their beloved Amale, including a pop-up shopping benefit, a fundraiser dinner and the annual Hope for CJD charity 5K walk.
Brian’s Story
Inspired by his grandmother — the late Barbara Tanz — and her battle with CJD, Brian ran the 2016 Boston Marathon in her memory and is pursuing a medical career in neurology.
Brandi and Jeffrey’s Story
After Brandi’s father died of CJD, she and her husband, Jeffrey, made it their mission to raise awareness of prion disease. As hosts of Beverly Hills Strides for CJD, they have raised funds for CJD Foundation programs and research and lent support to affected families, as well as attracting media attention to the cause.
Amanda’s Story
Amanda’s Story Follow the journey of Amanda and her husband, Bradley, as they fight to have children free of the gene that causes Gerstmann-Straussler-Scheinker disease, a prion disease that has “stalked her family for generations.”
Sonia’s and Eric’s Story
Read the compelling story of Sonia and her husband, Eric, as they change career paths to become researchers and race to find a cure for prion disease, which runs in a genetic form in Sonia’s family.